I was bed ridden for less than a year, 3 years after infected. I improved slowly and had short relapses during improved/ improving state. I had another relapse a year after, for approximately 3 months. Then, on the rise again and not been bed ridden since 2010. But I am not recovered at all. Can't work since the first bedridden episode, tried part timeing, couldn't manage it. I'm house bound most of the time, there are episodes I feel seriously well but they are short lived.
But to be honest it's not that bad. Surely I would like to feel well all the time, or at least most of the time. Still, I consider myself lucky after the bed bound episode. I know what it could be like, almost choking with tears remembering that time... It was awful, and I know some of us are unlucky and they are not doing well at all. My heart goes out for them, wish them and everyone better health.