Ayaju
Senior Member
- Messages
- 160
- Location
- San Diego, CA
This cardiologist knows nothing about CFS, and probably doesn't believe it's real. I expected more from her because she is one of the cardiologist's who works part time from the integrative medicine clinic, and her focus is on healing through nutrition. I've had serious concerns (and a couple of incidents) regarding my heart for years, but never talked about it with a doctor. That's not exactly true; in 2005, after a probable heart incident, I went to a cardiologist but was basically told I was too young to have heart problems and dismissed before I could even tell her what happened. That was before I was 50. She clearly didn't know that CFS can cause heart problems at any age; well, she clearly never heard of CFS.
So, today, at the appointment with this cardiologist, when she got to the part about my needing a stress test, I tried and tried and tried to explain to her about CFS (which I've had for 16 years), and that a stress test could kill me. Especially given that no one administering the test would have any knowledge of CFS and would not know not to push me to do more than I could do. Personally, I think this doctor was the hostile one for not "hearing" me!
Finally, I just got really quiet, tears formed in my eyes, and I softly said, "I have been completely alone. No help, no guidance, no support from any doctor. I apologize if I seem hostile, I don't mean to be, but you don't know what it's like." I think she might have heard me because the energy shifted a little. She's going to try to get me an MRI stress test, if my insurance will pay for it; which is iffy. It would be cool to be able to see clear pictures of my heart. She won't discuss nutritional approaches to heart health with me until she finds a problem.
I'm wearing a heart holster right now to monitor my heart for 24 hours. I haven't had any palpitations or pains yet, but I did have an OI episode when I tried to get my nap.
Anyway, I'm still searching for a primary care doctor here who is at least teachable about CFS.
Judy
So, today, at the appointment with this cardiologist, when she got to the part about my needing a stress test, I tried and tried and tried to explain to her about CFS (which I've had for 16 years), and that a stress test could kill me. Especially given that no one administering the test would have any knowledge of CFS and would not know not to push me to do more than I could do. Personally, I think this doctor was the hostile one for not "hearing" me!
Finally, I just got really quiet, tears formed in my eyes, and I softly said, "I have been completely alone. No help, no guidance, no support from any doctor. I apologize if I seem hostile, I don't mean to be, but you don't know what it's like." I think she might have heard me because the energy shifted a little. She's going to try to get me an MRI stress test, if my insurance will pay for it; which is iffy. It would be cool to be able to see clear pictures of my heart. She won't discuss nutritional approaches to heart health with me until she finds a problem.
I'm wearing a heart holster right now to monitor my heart for 24 hours. I haven't had any palpitations or pains yet, but I did have an OI episode when I tried to get my nap.
Anyway, I'm still searching for a primary care doctor here who is at least teachable about CFS.
Judy