charles shepherd
Senior Member
- Messages
- 2,239
Powerful You Tube video made by a person with ME/CFS:
-
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
British ME/CFS Research Needs Transparency
- Thread starter charles shepherd
- Start date
5150
Senior Member
- Messages
- 360
United States ME/CFS Research Needs Transparency
add Australia, too
frankly, add just about the whole world.
The Question is, Why is there such a lack of transparency about this topic?
...must be about "losing money" , if answers do come from following the money.
add Australia, too
frankly, add just about the whole world.
The Question is, Why is there such a lack of transparency about this topic?
...must be about "losing money" , if answers do come from following the money.
Esther12
Senior Member
- Messages
- 13,774
Good work. Having a video is rather more emotionally powerful than a post. Painful to watch in places... but I'm always terrible with stuff like that.
Feels petty to quibble, but I'm not so sure we should assume CBT is useful for helping people live with a life-altering illness. From what I've seen, it is often a useless imposition for those with cancer, etc too. Much depends on the patient and the therapist, but to me, it seems that standards for CBT are too low for a wide range of applications, given the impact it can have upon patients.
Feels petty to quibble, but I'm not so sure we should assume CBT is useful for helping people live with a life-altering illness. From what I've seen, it is often a useless imposition for those with cancer, etc too. Much depends on the patient and the therapist, but to me, it seems that standards for CBT are too low for a wide range of applications, given the impact it can have upon patients.