Jennifer J
Senior Member
- Messages
- 997
- Location
- Southern California
Hi, Everyone. Thank you all for all your input into these forums. It is very helpful especially laying crashed in my bed. I really appreciate everyone's effort and knowledge.
Here's my dilemma, my PCP retired and now I'm in search of a new doctor. I was thrilled when I found the ICC primer thinking this would be good to share with doctors when I see them. Expressing myself is often a struggle with my slow, foggy brain.
I don't know what to say now that the IOM report is out. Is the ICC the best thing to show them? What would I say to the doctor, especially if they speak of the IOM or the CDC's CFS site?
I tend to do a poor job knowing what or how to express to anyone details about our medical condition. (I know the history and all.) When I have shared with someone, they usually seem to take it in a direction that I need to respond more which I don't have the speed, energy or words to do so. Some day I'd like to find a way to condense some of this in a one or two page format to give out which would also include a little about CFS and CDC history. People I'd like to share with wouldn't take the time to read any of the longer written pieces on this.
Any suggestions regarding what to give and say to a new doctor (the IOM or ICC or ?), and words that you have used that have helped others to understand, would be so greatly appreciated. Thank you.
Here's my dilemma, my PCP retired and now I'm in search of a new doctor. I was thrilled when I found the ICC primer thinking this would be good to share with doctors when I see them. Expressing myself is often a struggle with my slow, foggy brain.
I don't know what to say now that the IOM report is out. Is the ICC the best thing to show them? What would I say to the doctor, especially if they speak of the IOM or the CDC's CFS site?
I tend to do a poor job knowing what or how to express to anyone details about our medical condition. (I know the history and all.) When I have shared with someone, they usually seem to take it in a direction that I need to respond more which I don't have the speed, energy or words to do so. Some day I'd like to find a way to condense some of this in a one or two page format to give out which would also include a little about CFS and CDC history. People I'd like to share with wouldn't take the time to read any of the longer written pieces on this.
Any suggestions regarding what to give and say to a new doctor (the IOM or ICC or ?), and words that you have used that have helped others to understand, would be so greatly appreciated. Thank you.
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