Which research organisations support with collecting money?
Hi,
I would like to give a donation to 2-3 CFS research organisations. I asked my firends and family about the supporting of CFS research and they sent me untill now aroud 1000 EUR. Now I am thinking where to send this money. I am not strong at all in the research area but I would like to spend this money efficient (for example I have read that CDC doesnt make a good CFS research). So I would like to ask you where could I send the money. Now I have impression that everyone send the money to WPI but maybe its not good to send all the money only there. I checked some research organisations and I liked these ones:
WPI, CFIDS Association of America, European Society for ME (ESME). My question is what do you think about these organisations - is it a good choice? or could you eventually propose other good research organisations?
I also will try to motivate other CFS patients in my country to try to collect some money with they families and friends - I already asked some patients if they already supported a research but no-one did it - but some of them told me that even if they dont have too much money they will try the some thing like me. I think this is only the thing what we can do now to push the research when the CFS research organisations dont get too much support from grants.
I also will try to contact the CFS organisations in other countries (more the other countries like US, UK - they support the research already quite a lot) - and maybe they can motivate the patients in their countries to do the same. But I have no contacts to foreign CFS organisations - so if you have some - just write me. Or just the people from other countries - who visite this web site- they can already contact their country CFS organisations because its easier because of the language.
Ok, I think we have to try something to dont wait other 20 years for an efficient treatement. If someone has another idea how to push the research or something else what we need - just let me know. If I can help, i will try to do my best for it.
caf
Hi,
I would like to give a donation to 2-3 CFS research organisations. I asked my firends and family about the supporting of CFS research and they sent me untill now aroud 1000 EUR. Now I am thinking where to send this money. I am not strong at all in the research area but I would like to spend this money efficient (for example I have read that CDC doesnt make a good CFS research). So I would like to ask you where could I send the money. Now I have impression that everyone send the money to WPI but maybe its not good to send all the money only there. I checked some research organisations and I liked these ones:
WPI, CFIDS Association of America, European Society for ME (ESME). My question is what do you think about these organisations - is it a good choice? or could you eventually propose other good research organisations?
I also will try to motivate other CFS patients in my country to try to collect some money with they families and friends - I already asked some patients if they already supported a research but no-one did it - but some of them told me that even if they dont have too much money they will try the some thing like me. I think this is only the thing what we can do now to push the research when the CFS research organisations dont get too much support from grants.
I also will try to contact the CFS organisations in other countries (more the other countries like US, UK - they support the research already quite a lot) - and maybe they can motivate the patients in their countries to do the same. But I have no contacts to foreign CFS organisations - so if you have some - just write me. Or just the people from other countries - who visite this web site- they can already contact their country CFS organisations because its easier because of the language.
Ok, I think we have to try something to dont wait other 20 years for an efficient treatement. If someone has another idea how to push the research or something else what we need - just let me know. If I can help, i will try to do my best for it.
caf