Daisymay
Senior Member
- Messages
- 754
We are looking into becoming a UK charity. I hope we can!
Can you try the line that you are an international charity hence it would be valid for you to be able to raise funds via Amazon from sales worldwide?
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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We are looking into becoming a UK charity. I hope we can!
Hey @Strawberry
I had a crash a couple days ago, and this afternoon but not so bad-hence why I havn't updated thread with new update. We are here till the 4th March
Ben, I can’t help noticing that since your arrival in California, traditionally land of earthquakes and forest fires, it has been transformed into the land of mudslides and failing dams! I’m just wondering if this has anything to do with the coming of you and Claire, who maybe not so coincidentally are from the UK, land of rain and fog? Have you singlehandedly somehow ended our extreme drought???
Will keep a close eye on what happens (or doesn’t!) when you depart on 3/4!
Seriously, I’m really glad for you both that you have such an extended stay with Ron and Janet and very much look forward to following your continuing saga — I hope you recover soon from your crash. Someday I think you will be able to return and be a real tourist in San Francisco, walking everywhere and eating everything, thanks in large part to the work of Ron Davis and OMF.
Now there is a wicked teaser--how are we going to sleep tonight?last few days have been crazy-in a brilliant way! Will update tommorow
Now there is a wicked teaser--how are we going to sleep tonight?
That would be amazing! I tried to set up a sort of fundraiser for my family to donate money to OMF for my Christmas and birthday gifts. When they tried to donate it wouldn't work!We are looking into becoming a UK charity. I hope we can!
Thank you. Sent to Linda.That would be amazing! I tried to set up a sort of fundraiser for my family to donate money to OMF for my Christmas and birthday gifts. When they tried to donate it wouldn't work!
The most popular fundraising site is JustGiving.com, it would be fab if you were on there!
Haha, im sure you'll do just fine
Its not the next Lord of the Rings!!
(Its the editing that I have to do that takes ages-brainfawg=200edits and still not ideal!)
B
Hi @Gingergrrl I hope you don't mind me asking what it is they think you have now? If not ME/CFS?
Ben, I can’t help noticing that since your arrival in California, traditionally land of earthquakes and forest fires, it has been transformed into the land of mudslides and failing dams! I’m just wondering if this has anything to do with the coming of you and Claire, who maybe not so coincidentally are from the UK, land of rain and fog? Have you singlehandedly somehow ended our extreme drought???
Yea I've recovered somewhat-last few days have been crazy-in a brilliant way!
@Gingergrrl I am so sorry. Please don't worry about it. I'm afraid I am relatively new and I haven't worked out how to PM or many other things.
It is indeed a wonderful happy thread that @Ben Howell has created.Love to all here.
To say I was a little intimidated by the ridiculous intellect in the room would be an understatement, but my little talk seemed to go down well.
I felt very fortunate to be able to talk to him, and tried to convey on behalf of the community what it is like to have MECFS-I did my best.
I left with a message of hope-literally, with Craig Heller saying 'we're gonna figure this out'.
I agree! I don't know @Rose49 or @Ben Howell or @JaimeS but they all seem like the rockstars of MECFS to me. Among other vocal advocates for us, of course. I am loving this thread so much!
I want to add a reminder that if you purchase things on Amazon you can donate to Ron Davis' research by going to http://smile.amazon.com/ and selecting OMF as your charity.
it was filmed last Monday and likely will be out on Monday or Tuesday. Ashley has been editing it to put in his slides.Fantastic, Ben! Thanks so much for your account. We're so very lucky to have all these great people working for us.
You mentioned Ron's upcoming video. Do you know if it has been filmed yet and, if so, when it will be released?