Mrs Sowester
Senior Member
- Messages
- 1,055
Yup, it was a many tissue program. Still weepy now.
Such hopeful news re. NICE and PACE's death throws.
Very glad I listened.
It's difficult to listen to the BPS view put forward at all, but the Beeb has to be balanced and the program did definitely come down on our side.
I don't think anyone of us pwme have avoided disbelief. I had to prove myself to be genuinely physically ill, in doing so I made myself worse. I knew I should have been resting (and not going for walks till my fingers went blue or my knees buckled) but the people around me just couldn't accept my word.
My daughter's onset was about a year or two after my own, fortunately she was 21, but she still faced disbelief. People assumed she was just imagining she had ME because I have it, but I knew she had it too because she was complaining of symptoms I hadn't told her about. I was able to fight for her and help her avoid my mistakes. I'm grateful for that.
Knowing how much I want to protect my adult daughter makes my heart go out to the parents like those in the program. And those poor children, to have such a cruel, lonely illness and be abused by the system that is supposed to protect them, its just so awful, so very terrible. There just aren't the words.
Such hopeful news re. NICE and PACE's death throws.
Very glad I listened.
It's difficult to listen to the BPS view put forward at all, but the Beeb has to be balanced and the program did definitely come down on our side.
I don't think anyone of us pwme have avoided disbelief. I had to prove myself to be genuinely physically ill, in doing so I made myself worse. I knew I should have been resting (and not going for walks till my fingers went blue or my knees buckled) but the people around me just couldn't accept my word.
My daughter's onset was about a year or two after my own, fortunately she was 21, but she still faced disbelief. People assumed she was just imagining she had ME because I have it, but I knew she had it too because she was complaining of symptoms I hadn't told her about. I was able to fight for her and help her avoid my mistakes. I'm grateful for that.
Knowing how much I want to protect my adult daughter makes my heart go out to the parents like those in the program. And those poor children, to have such a cruel, lonely illness and be abused by the system that is supposed to protect them, its just so awful, so very terrible. There just aren't the words.