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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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The CDC opened a job search for his position about the same time the HIV/AIDS team decided there was no XMRV in CFS and then kept it open as it was due to expire not long after the Alter/Lo paper came out. Why did they that? Did they not get the right applicants or are they waiting for more clarity to determine what kind of researcher they want? We don’t know but the position presents the opportunity for the right kind of researcher to get 'in' and for substantial change in the CDC's orientation to ME/CFS.
Lovely positive article Cort - and a little in the UK with people coming together on all fronts. Not quite your pioneering spirit yet. But wewill get there !:victory:
Its not like we're being a little underfunded - we're being almost completely ignored. 800,000 ill women being completely IGNORED and millions more with other diseases being mostly ignored.
That ought to get somebody - some female politician who knows what discrimination is like - to try and take some real action.
I think the female tie-in is RICH with possibilities.
Thanks Berthe - just looking at your avatar with your lovely smile puts a smile on my face
I wonder if PANDORA would have ideas about how to get that out--and fill in the blanks. They seem like a strong, politically oriented advocacy group to me. Their address is www.pandoranet.info