IreneF
Senior Member
- Messages
- 1,552
- Location
- San Francisco
I've lost some weight lately (altho I'm still overweight) and my BP has almost gone back to its old normal of 90/60. It was 92/63 at my appt. w/ my new primary care doc (not my cfs specialist). He was fussing at me about it even tho it's not a problem for me. Sometimes things go gray and I see stars, but I just put my head down. He wants me to cut back on a drug I'm taking for hair loss that acts as a diuretic. But why? What's wrong with low BP if it's been low nearly all my life?
I used to take Florinef and drink salt water during the day. I would pee buckets every night. Now I consume smoothies and salty soups and don't worry so much about water. I mix a glob of miso and a glob of PB and add hot water--instant soup. I put a lot of salt on my food. I'm not sure how much it helps, since I think the mechanisms behind OI and POTS are only partly affected by what you eat or drink and have more to do with homeostasis gone awry.
BTW, you can buy salt tablets at any drugstore, but they are expensive when you realize they are just salt.
I just found out that lots of people have holes between the right and left sides of their hearts, but they are never found because most of the time they don't cause problems. Is this something to explore, Ginger, or have your cardiologists already considered the possibility?
I used to take Florinef and drink salt water during the day. I would pee buckets every night. Now I consume smoothies and salty soups and don't worry so much about water. I mix a glob of miso and a glob of PB and add hot water--instant soup. I put a lot of salt on my food. I'm not sure how much it helps, since I think the mechanisms behind OI and POTS are only partly affected by what you eat or drink and have more to do with homeostasis gone awry.
BTW, you can buy salt tablets at any drugstore, but they are expensive when you realize they are just salt.
I just found out that lots of people have holes between the right and left sides of their hearts, but they are never found because most of the time they don't cause problems. Is this something to explore, Ginger, or have your cardiologists already considered the possibility?