Anyone else have this Suspicion- (PACVS)- Dysautonomia/Worsening of MECFS baseline after Vax?

[JasonPerth]

Hi all, i saw this Article today, ( please give it a read
If you could also let me know about its legitimacy that would be appreciated!i have no idea.)

https://www.mdpi.com/2076-393X/11/11/1642

And it raised my suspicions.

I have these suspicions because ive had Very Mild MECFS post virus 2016-2022

I had 3 vax between 2021 Dec(bad crash for 2 weeks with mild left sided chest tightness/Emergency department found no issues) and March 2022

Between July and October i started feeling much more worse then usual. I slowly started doing less and less outside of work hours, and even at work i was doing less and less, i also developed NEW cognitive disturbances/symptoms i never had before. And slowly recognised muscles wasting away , some joints clicking , which wasnt apparent until they suddenly disappeared quickly months later.

!!!.I was feeling like i was deteriorating before the following event.!!!

In November i got rhinovirus and now i have all the dysautonomia symptoms that i never had before 2022. Only the 3 hallmark MECFS Symptoms is what i had. (PEM, Abnormal Fatigue, unrefreshed after rest,sleep)

Ive got no idea if this is just natural and sudden random MECFS deterioration event(as ive had many illnesses between the Rhinovirus and 2016 that caused no issue) (aswell as feeling very abnormal before this event with new symptoms) or if its not random at all and indeed Dysautonomia from PACVS ontop of MECFS? Or in a layman theory- all events jumbled up just made MECFS worse with dysautonomia symptoms?

If that is what it is, has anyone else has similar suspicions? Regarding PACVS

Before Covid existed and the Covid vaccines, did everyone else who was Housebound or worse have POTS and dysautonomia issues as common as it seems now post covid and vax?

Is anyone else like me with worsening of symptoms after Vax?

I never heard of dysautonomia as much as i have since 2019
Why? Whats new?
PACVS?

 

[sunshine44]

Sorry for your struggles. 6 years bedridden here. In 2007, I had never heard of dysautonomia, I was still being misdiagnosed with anxiety etc for years and years. I honestly knew nothing about it until 2017 when I became severe. And it wasn’t even through my doctors I learned about it. But through the Lyme community. I started realizing more people were getting this mystery invisible ailment but since covid, it’s exploded I feel. Even my friends teenage daughter now has dysautonomia and my young daughter shows signs too. Yet the specialist here has never heard of dysautonomia when my husband took my daughter to dr last fall 🙈

I often wonder what’s with the steep increase past decade. I never knew anyone with this growing up. Although I don’t have the answers, I do feel viruses are affecting the endothelial system much more frequently for unclear reasons. It’s hard to know if we were already having absorption and mineral deficiencies that contributed to severity levels but, it’s very clear something is happening. It’s astounding it’s on so few doctors radars. It’s not a large concern in medical community yet just slightly debilitating for some of us.

I became much worse after a flu shot over 10 years ago and my daughters dysautonomia symptoms really began after the covid vaccine. It’s all incredibly frustrating. And you feel you can’t even talk to your dr about it because of the repercussions of saying anything negative about vaccines.

Anyways, wishing you well on your healing journey.

 

[crickett]

Weirdly enough, this is what I came on here to ask about. The Covid vaccine always makes me worse. With each one I’ve gotten a 24 hour fever which I believe causes some deterioration. Currently fevered from this seasons vax and it is hard. I am always filled with such fear and dread when I have a fever because I got this whole deal from almost a month with severe mono. I am have been holding on the edge of severe ME for a while and it sucks that I even have to consider declining seasonal vaccines because of how they effect me.