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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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thanks guys. just so depressed right now. I met 2 rappers on the bus home from buffalo. they were going to perform at the north by northeast musical festival here. it all just came back...the feeling that I lost my entire life. I don't know why. just happy people living their lives, doing what they enjoyed. they had toured in japan and had taken pics and made movies and videos. I just felt so....I cannot even describe it. so deeply sad. and seeing no end. they invited me to watch them perform but I know I will be too sick. I feel like I am in a small cage and screaming but no one can hear me
thanks guys. just so depressed right now. I met 2 rappers on the bus home from buffalo. they were going to perform at the north by northeast musical festival here. it all just came back...the feeling that I lost my entire life. I don't know why. just happy people living their lives, doing what they enjoyed. they had toured in japan and had taken pics and made movies and videos. I just felt so....I cannot even describe it. so deeply sad. and seeing no end. they invited me to watch them perform but I know I will be too sick. I feel like I am in a small cage and screaming but no one can hear me
Clindamyacin worked the best for me when I was first diagnosed with lyme...years later it stopped working and so did I, low fat diets seem to help my side effects when taking drugs. Clariothryomyacin gave me crying fits, and I would NEVER take septra or levaquin again for any amount of money, sulfa antibiotics and quinolones can damage you for life and even over very few doses.
I have said this too much already but, maybe most people's mitochondria dysfunction is a deficiency of molybdenum, and molybdenum can detox the immune suppressing yeast chemicals...I am starting to feel a bit like my old self since I started taking 5-6 pills of Molybdenum, 600mg selenium on empty stomach, and 20,000 vitamin D ius, today. Went to the mall today without any vague feelings of fear and my voice is getting deeper for some reason...
I was trying to remember what roundup is called in the drinking water, and remembered its called glyphosate...I was happy that I remembered it so quickly, word recall can be a big problem for me usually.
my plan is to get my body in the best shape as possible, and hope I can get vancomyacin from Dr Jemsek and knock the lyme/bartonella/mycoplasma out completely.
Hi @Charles555nc why are you taking the selenium? Thanks
What issues did u have with septra? it is the same as bactrim??
thanks guys. just so depressed right now. I met 2 rappers on the bus home from buffalo. they were going to perform at the north by northeast musical festival here. it all just came back...the feeling that I lost my entire life. I don't know why. just happy people living their lives, doing what they enjoyed. they had toured in japan and had taken pics and made movies and videos. I just felt so....I cannot even describe it. so deeply sad. and seeing no end. they invited me to watch them perform but I know I will be too sick. I feel like I am in a small cage and screaming but no one can hear me
hi charles. thanks for the info. i googled tindamax and it looks like a lot of people are scared of taking it....carcinogenic affects? or something... anyway i will read about it some more. at the moment, i am limited to what my doctor tells me to take in the abx department...but i am glad you have found things to help. I have ordered a large tub of L-glutamine!I totally forgot the most important drug besides clindamyacin, tindamax is something Im still on (for years) and keeps me away from the "life is miserable" level of symptoms, 3 pills two days out of the week to blow up lyme cysts, and I believe its also anti parasitic.
hi charles. thanks for the info. i googled tindamax and it looks like a lot of people are scared of taking it....carcinogenic affects? or something... anyway i will read about it some more. at the moment, i am limited to what my doctor tells me to take in the abx department...but i am glad you have found things to help. I have ordered a large tub of L-glutamine!
xoxox
wow it helped that much eh. interesting.500mg glutamine every two weeks is what i recemmend- just to prevent deficiency, and thats a tiny dose....and tindamax has no side effects for me, other than some herxing. Ive never heard of a cancer connection, and if there was, it was worth it for me to take it.- it did that much for me.
I also take methylation supplements and selenium etc etc which have strong cancer protective effects.
Hi Charles555nc,sulfa drugs like bactrim and septra, ruin lives. I had an autoimmune/cns reaction, to septra, that damaged me permanently.