Daffodil
Senior Member
- Messages
- 5,875
hello. i would love to hear from anyone who did antibiotics for borrelia/bartonella. i am having a weird time on them.
i was first on VSL-3, rifampin, clarithromycin, and a diet. after a few months of that, i was feeling better neurologically but the 8 times a day bowel movements were killing me.
then, i was told to stop the VSL-3 (which i told my doc was likely causing the diarrhea...but it was worsened when i upped the clarithromycin dose)).
then, i was switched from clarithromycin to doxycycline, which caused vomiting..so now i am on minocycline instead....and no probiotics (even though i am starting with the numerous bowel movements again).
my neurological improvements are gone. the brain is all swollen feeling again. is this due to my cheating on my diet (which i did big time recently), changing meds, or something else? this is very frustrating.
i was all gung ho about the gut treatment helping me, but i am just feeling so discouraged right now.
(i am also on gcmaf)
i wish there were more patients who are on similar protocols on this website, who could share experiences! i could join the lyme forums but would really rather talk to people who have a CFS diagnosis...
xoxox
i was first on VSL-3, rifampin, clarithromycin, and a diet. after a few months of that, i was feeling better neurologically but the 8 times a day bowel movements were killing me.
then, i was told to stop the VSL-3 (which i told my doc was likely causing the diarrhea...but it was worsened when i upped the clarithromycin dose)).
then, i was switched from clarithromycin to doxycycline, which caused vomiting..so now i am on minocycline instead....and no probiotics (even though i am starting with the numerous bowel movements again).
my neurological improvements are gone. the brain is all swollen feeling again. is this due to my cheating on my diet (which i did big time recently), changing meds, or something else? this is very frustrating.
i was all gung ho about the gut treatment helping me, but i am just feeling so discouraged right now.
(i am also on gcmaf)
i wish there were more patients who are on similar protocols on this website, who could share experiences! i could join the lyme forums but would really rather talk to people who have a CFS diagnosis...
xoxox