Kati
Patient in training
- Messages
- 5,497
Thank you so much for relaying the answers @Rose49 every morcel is helpful. Maintaining hope is where it's at right now.Ron has figured out that whatever is in the serum that's triggering this is a big molecule, so it could be a protein, A protein complex, or an antibody (which includes auto antibodies)
I wonder if Ron has an idea as of what medical specialty would be best suitable for us, and how his enthusiasm can be transferred to them doctors? We are still in the dark ages where patients are robbed of disabilities and where doctors do not know any better than prescribing group therapy and exercise therapy. It's unbelievable out there. (Of course I am looking forward, perhaps still cannot see clearly that Pluto has a heart on it yet, but it's rather good to be hopeful and try to figure out (or shape) the landscape ahead- it's hard to be patient)