Hi ,
I think I have mast cell disorder. I am now taking zyrtec which helps with the muscle and bone pain after using so many medications with no results. Benedryl does not do the job for me. Allegra is another drug that I will try very soon. I get eczema rash but nothing like what you see in Cama's picture. I also have a very large and burning belly, and a white raised coated tongue. The tongue symptom appeared very suddenly.
Hi SaraM,
Good to hear that Zyrtec is helping you!
My stomach blows up like a balloon when I react to something, and it doesn't have to be to something I've ingested. Cigarette smoke is just about the worst for me.
I also have the coated tongue and nystatin has helped in the past. I don't feel well on other antifungals which, probably not coincidentally, are listed as mast cell degranulators. I see that a number of masto patients mention candidiasis and taking probiotics, but I've yet to find documentation for this connection.
If my TMEP diagnosis is correct, which I believe it is, my skin is a bit of an anomaly (like 1 in 3 million). So don't go by that.