- Messages
- 15
Dear all,
I posted a message a while back with regards the forthcoming online survey about the role of peer online support communities. I wanted to start a new thread with this post so it has more prominence and that people have the chance to engage with it and make any comments they think relevant. I was worried my post was lost at the end of the other forum thread so here it is below. Many thanks, Neil.
Hello everyone,
I wanted to provide an update on progress and to seek your input into the study development.
By way of an update
Since I last posted I have been working on the development of the online survey that will form one part of the two part project (outlined in earlier posts). I am at the point where I am deciding what measures to include in the online survey and for this I thought it would be helpful and transparent to seek your input. The survey thus far includes:
- background details about respondents
- use of the PR forum (e.g. joining, no. of messages)
- motivations for using the PR forum
- open ended questions about online experiences of the PR forum
THEN
I intend to use a series of validated measures to tap into various cognitive factors and relate these to some of the variables included above. From chatting to Mark I understand that there is a range of experience and familiarity with some of these measures and I thought it would be helpful to list those that I am proposing to include (in addition to those above) but to seek suggestions from the membership of any other measures that people might feel useful. At the end of the day I would like to examine whether participation in the PR forum is related to any measures of well-being (broadly defined) and this has informed my choice of measures so far.
Measures to be included
CFS Illness Perception Questionnaire
HADS - a measure of anxiety and depression
Life Orientation Test - a measure of optimism
Brief Cope - a measure of coping
AND SUGGESTIONS FOR ANY OTHER IMPORTANT MEASURES??????
At this point I wondered if any members with views on any other measures that might be relevant could suggest them to me? I have ideas but I would really like to engage with you and find out from your own past experiences any measures that you have worked with, read about or you are aware of that would be useful. I am also conscious of survey length so will have to make a judgment call if several are suggested but it is important to me to include measures that are validated, are understandable to members and the wider academic community and which tap into salient aspects of the CFS/ME experience (and which may be related to participation in the PR forum). I'd welcome your thoughts - either on this forum or directly via email if that is easier (neil.coulson@nottingham.ac.uk).
Once confirmed - I then apply for ethics approval from my Institution and then when granted we can go live with the survey.
I look forward to hearing from you and many thanks in advance - I truly appreciate your time.
Best wishes to all,
Neil
I posted a message a while back with regards the forthcoming online survey about the role of peer online support communities. I wanted to start a new thread with this post so it has more prominence and that people have the chance to engage with it and make any comments they think relevant. I was worried my post was lost at the end of the other forum thread so here it is below. Many thanks, Neil.
Hello everyone,
I wanted to provide an update on progress and to seek your input into the study development.
By way of an update
Since I last posted I have been working on the development of the online survey that will form one part of the two part project (outlined in earlier posts). I am at the point where I am deciding what measures to include in the online survey and for this I thought it would be helpful and transparent to seek your input. The survey thus far includes:
- background details about respondents
- use of the PR forum (e.g. joining, no. of messages)
- motivations for using the PR forum
- open ended questions about online experiences of the PR forum
THEN
I intend to use a series of validated measures to tap into various cognitive factors and relate these to some of the variables included above. From chatting to Mark I understand that there is a range of experience and familiarity with some of these measures and I thought it would be helpful to list those that I am proposing to include (in addition to those above) but to seek suggestions from the membership of any other measures that people might feel useful. At the end of the day I would like to examine whether participation in the PR forum is related to any measures of well-being (broadly defined) and this has informed my choice of measures so far.
Measures to be included
CFS Illness Perception Questionnaire
HADS - a measure of anxiety and depression
Life Orientation Test - a measure of optimism
Brief Cope - a measure of coping
AND SUGGESTIONS FOR ANY OTHER IMPORTANT MEASURES??????
At this point I wondered if any members with views on any other measures that might be relevant could suggest them to me? I have ideas but I would really like to engage with you and find out from your own past experiences any measures that you have worked with, read about or you are aware of that would be useful. I am also conscious of survey length so will have to make a judgment call if several are suggested but it is important to me to include measures that are validated, are understandable to members and the wider academic community and which tap into salient aspects of the CFS/ME experience (and which may be related to participation in the PR forum). I'd welcome your thoughts - either on this forum or directly via email if that is easier (neil.coulson@nottingham.ac.uk).
Once confirmed - I then apply for ethics approval from my Institution and then when granted we can go live with the survey.
I look forward to hearing from you and many thanks in advance - I truly appreciate your time.
Best wishes to all,
Neil