PhoenixDown
Senior Member
- Messages
- 456
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- UK
Thanks Suzy.. the acronym BDS is just one letter short of perfection.
(Anyone who gets that joke, go directly to Church)
Hah, if you ask me it's one letter too long, trying removing the "D".
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Thanks Suzy.. the acronym BDS is just one letter short of perfection.
(Anyone who gets that joke, go directly to Church)
He also suggested a possible new name for the condition; 'Body Distress Disorder' which he believes may be more acceptable to patients and GPs.
Interesting so they'll become "fatigue" clinics and people with ME, with their unusual response to exertion, will be a much smaller percentage of the patients.A) Presentations
Peter White reported on the experience of Chronic Fatigue clinics in UK. These were set up with government funding for 3 years. Most have continued as their funding has been assimilated by local healthcare funders.
Initial assessment revealed that 42% of patients did not have CFS but had a medical or psychiatric disorder that led to fatigue.
The management of CFS in the clinics consists of CBT and Graded Exercise Therapy with appropriate medical care. Results show that in most clinics there is evidence of improvement particularly in reducing fatigue, but less so on SF-36.
In the future the clinics may extend to treat patients with fibromyalgia and fatigue secondary to physical illness (eg cancer)
Alliance with patients the current emphasis of much research is our search for aetiology but there should be more emphasis on treatment so we can help patients more. This would be more pragmatic but we need more studies on how to develop effective treatments. Such research should include defining the optimal explanation that doctors and other health professionals can use routinely with their patients.
We need more user-friendly explanation to patients doctors should be able to tell people in simple terms what is wrong with them.
Yes Dolphin, diluete then dismiss. Part of the problem, I am beginning to suspect, is that psychosomatic psychiatry is disconnected from mainstream psychiatry, though not as much as it is disconnected from neurobiology or other biomedical sciences. They are affirming each other, but ignoring criticism from outside their in-group, which looks very much like a cult to me. Here is the hard question that in nearly a century no psychosomatic proponent has ever answered: where is the hard object unequivocal data that psychosomatic illness even exists? If any MUPS is not physical because of no hard data of pathology (which is easy to dispute if they bother to crack open a few biomedical journals) then it follows that psychosomatic diagnosis are not valid, and therefore the diagnosis has no basis. They are hung by their own rope. If they argue from a consensus opinion that their view has validity, then we can argue from a consensus opinion from biomedical researchers on ME. If they argue that its all part of the mind body connection, and therefore it is reasonable to say the cause is mental, we can equally argue that therefore the cause is physical by parallel reasoning, that any mental issues if present are secondary. From a rational perspective, this is a no-win scenaio for them, and meanwhile the biomedical sciences are unravelling causality that will undermine the psychosomatic view, as it did for asthma, stomach ulcers, diabetes, mulitple sclerosis, rheumatoid arthritis and lupus. Bye, AlexInteresting so they'll become "fatigue" clinics and people with ME, with their unusual response to exertion, will be a much smaller percentage of the patients.
Interesting so they'll become "fatigue" clinics and people with ME, with their unusual response to exertion, will be a much smaller percentage of the patients.
Thanks for posting the notes around.Do we have any other references by Peter White or others to the potential broadening out of the NHS CFS clinics' scope to include treatment of patients with "fatigue secondary to physical illness (eg cancer)"? BTW, Dolphin, I've put these meeting notes out on Co-Cure and ME Association FB.
Suzy
bodily distress syndrome rofl
bodily distress syndrome rofl
Peter White reported on the experience of Chronic Fatigue clinics in UK. These were set up with government funding for 3 years. Most have continued as their funding has been assimilated by local healthcare funders.
Initial assessment revealed that 42% of patients did not have CFS but had a medical or psychiatric disorder that led to fatigue.
The management of CFS in the clinics consists of CBT and Graded Exercise Therapy with appropriate medical care. Results show that in most clinics there is evidence of improvement particularly in reducing fatigue, but less so on SF-36.
In the future the clinics may extend to treat patients with fibromyalgia and fatigue secondary to physical illness (eg cancer)
It's funny until you realise they're serious.
We need more user-friendly explanation to patients doctors should be able to tell people in simple terms what is wrong with them.
We should find out whether the WHO group for classification of somatic distress and dissociative disorders will provide a better diagnostic system for these disorders
Interesting so they'll become "fatigue" clinics and people with ME, with their unusual response to exertion, will be a much smaller percentage of the patients.
In the future the clinics may extend to treat patients with fibromyalgia and fatigue secondary to physical illness (eg cancer)