stridor
Senior Member
- Messages
- 873
- Location
- Powassan, Ontario
I realize that there is an excellent B2 thread on the go. Anyone who has waded into it can't help but be amazed by the amount of information that was exchanged last year. The problem is that the thread is no longer very active and I had uncertainty whether a new entry would even get noticed. Or that's how I feel anyway...if a moderator would like to move this to that thread, I would understand.
My story starts with a history of ailments, Bipolar Disorder, eczema, psoriasis, folliculitis, seb-derm, lattice degeneration (holes in retinas), moderate+ tinnitus, hyperplastic polyposis (colon removed this year), CCSVI (chronic cerebrospinal venous insufficiency, Hg toxicity....and after unsafe amalgam removal I added ME/CFS, thyroid and adrenal failure to the list.
After a tough 11 months of chelation - with any activity triggering post-exertional fatigue. I tried some mB12. My tongue swelled, developed fissures and became sore as blazes. I interpreted this as a sign that my body was rejecting the new treatment and stopped. I didn't have much in terms of improvement - I was on folic acid at the time - I had no clue what I was doing and this was months before 23andme = C677T ++
Fast-forward to July 2012. I had diabetes insipidus and was peeing 20+ times a day (too fogged to keep track of it) - up 4-5 times a night. By this time, I had to return to work because the insurance company thought that I was malingering. I was unable to stand and think at the same time and was sent home "incapable". This inability to stand was ruining my life. I found out that it was part of ME/CFS and was related to a "measurable change in circulation" to the brain. I thought what the blazes does that mean.
I knew people with MS had problems with the veins in the neck so I got tested for it and had bidirectional blood flow on the left side. I was on-line whining about all of the strange problems I had methylation was pointed out to me again....as well as the symptoms of B2 deficiency.
I started mfolate 1 mg and mB12 1 mg and took 100 mg B2. A couple of weeks later the symptoms of B2 deficiency came back - different this time though. I had angry capillaries circling the corneas, cracks at the corners of my mouth, rash on my nose, cheek and left jaw line and a rash on my wiener. I realized that I wasn't peeing yellow with the B2 so I took more and more. I didn't know that it could take a couple of weeks for improvements to be noted. I decided to take it until my urine turned yellow.
I took 18 capsules the first day and 16 capsules the next. On a whim, I tried some probiotics and just like that things settled down. I take 1+mg daily by needle and 100 mg 3 times daily otherwise. When my urine starts to clear I take a couple of probiotics. I am obviously going to have to go onto a regular regime. I also do not absorb mfolate worth a dang and take it sublingually.
Any decrease of B2 - 200 mg a day for example, and I get parathesia along the left jawline where the majority of the rash was.
As I said, I have gut problems and had a diseased colon removed.
In the end, mB12 took me from being a basket-case sitting at home to being able to return to work and being put in charge of my area. BTW the diabetes Insipidus improved within days of starting the methylation supplements.
Anyway, I don't want to drag this out as I am uncertain how much interest there is in B2 anymore. brad
ACE Del16 ++ AGT ++ COMT ++ MTHFD1 ++ MTHFD1L ++ (x2) C677T ++ MTRR ++ (x2) NOS2 ++
NOS3 G10T ++ TCN2 ++ TYMS ++
BHMT R239Q +- CBS +- (x4) DAO +- FOLR2 +- FOLR3 +- (x2) FUT2 +- GAD1 +- (x7) TCN3 +-
MTHFRD1 +- (x2) MTHFS +- NOS3 +- (x3) PEMT +- (x3) SHMT1 C1420T +- SLC19A1 +- (x2)
VDR Bsm +-
My story starts with a history of ailments, Bipolar Disorder, eczema, psoriasis, folliculitis, seb-derm, lattice degeneration (holes in retinas), moderate+ tinnitus, hyperplastic polyposis (colon removed this year), CCSVI (chronic cerebrospinal venous insufficiency, Hg toxicity....and after unsafe amalgam removal I added ME/CFS, thyroid and adrenal failure to the list.
After a tough 11 months of chelation - with any activity triggering post-exertional fatigue. I tried some mB12. My tongue swelled, developed fissures and became sore as blazes. I interpreted this as a sign that my body was rejecting the new treatment and stopped. I didn't have much in terms of improvement - I was on folic acid at the time - I had no clue what I was doing and this was months before 23andme = C677T ++
Fast-forward to July 2012. I had diabetes insipidus and was peeing 20+ times a day (too fogged to keep track of it) - up 4-5 times a night. By this time, I had to return to work because the insurance company thought that I was malingering. I was unable to stand and think at the same time and was sent home "incapable". This inability to stand was ruining my life. I found out that it was part of ME/CFS and was related to a "measurable change in circulation" to the brain. I thought what the blazes does that mean.
I knew people with MS had problems with the veins in the neck so I got tested for it and had bidirectional blood flow on the left side. I was on-line whining about all of the strange problems I had methylation was pointed out to me again....as well as the symptoms of B2 deficiency.
I started mfolate 1 mg and mB12 1 mg and took 100 mg B2. A couple of weeks later the symptoms of B2 deficiency came back - different this time though. I had angry capillaries circling the corneas, cracks at the corners of my mouth, rash on my nose, cheek and left jaw line and a rash on my wiener. I realized that I wasn't peeing yellow with the B2 so I took more and more. I didn't know that it could take a couple of weeks for improvements to be noted. I decided to take it until my urine turned yellow.
I took 18 capsules the first day and 16 capsules the next. On a whim, I tried some probiotics and just like that things settled down. I take 1+mg daily by needle and 100 mg 3 times daily otherwise. When my urine starts to clear I take a couple of probiotics. I am obviously going to have to go onto a regular regime. I also do not absorb mfolate worth a dang and take it sublingually.
Any decrease of B2 - 200 mg a day for example, and I get parathesia along the left jawline where the majority of the rash was.
As I said, I have gut problems and had a diseased colon removed.
In the end, mB12 took me from being a basket-case sitting at home to being able to return to work and being put in charge of my area. BTW the diabetes Insipidus improved within days of starting the methylation supplements.
Anyway, I don't want to drag this out as I am uncertain how much interest there is in B2 anymore. brad
ACE Del16 ++ AGT ++ COMT ++ MTHFD1 ++ MTHFD1L ++ (x2) C677T ++ MTRR ++ (x2) NOS2 ++
NOS3 G10T ++ TCN2 ++ TYMS ++
BHMT R239Q +- CBS +- (x4) DAO +- FOLR2 +- FOLR3 +- (x2) FUT2 +- GAD1 +- (x7) TCN3 +-
MTHFRD1 +- (x2) MTHFS +- NOS3 +- (x3) PEMT +- (x3) SHMT1 C1420T +- SLC19A1 +- (x2)
VDR Bsm +-