The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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what would you do

Discussion in 'General ME/CFS Discussion' started by Darran321, Jul 12, 2017.

  1. Darran321

    Darran321

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    Hi Everyone
    Three years ago i was a high level road race cyclist, who would incorporate running and other sports
    into my daily life, like alot of people on here i got a virus, fever and severe fatigue,
    numerous blood test showed nothing, MRI brain Scan like wise, obviously depression kicked in, very bad depression,
    Over the three year period i have managed to come off depression medication, but from day one my symptoms
    have never changed i get severe head pressure pain to the sides of my head and middle part of my head, never in the front.
    i also get pain in my neck glands these are my only symptoms they last maybe 1hr a day at different times of the day, people question weather i have CFS, but i know it is because everytime i try to exercise,48 hours later the head pressure pain and neck gland pain return and are more severe, i would like some advice as to going
    private to see someone or trying a different treatment, i have seen smaill inprovments through cold showers
    twice a day, and acupuncture
     
  2. TenuousGrip

    TenuousGrip Senior Member

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    MeSci likes this.
  3. Darran321

    Darran321

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    thanks for the link, will have a good read, yes i believe i have been tested for 90% of them
     
  4. Dechi

    Dechi Senior Member

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    I don't know where you're from but it might be worth looking into Dr John Chia, in California.
     
  5. pattismith

    pattismith Senior Member

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  6. Darran321

    Darran321

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    Hi
    Yes i get more success from cold showers then any other treatment, for an example, if i feel the pain/ head pressure
    pain in neck glands, soon as i get a cold shower lasting 3/4 mins, i can last almost the full day without any pain at all.
    i dont know what effect it has on my body but i know 100% it works every single time
     
    pattismith likes this.
  7. lnester7

    lnester7 Seven

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    Hmm might be the vasoconstriction from cold water, see of you feel worst on dilators ( sun, alcohol,... you can google) and do great on vassocontriction stuff. If so ( like me) I lead a somewhat normal life on vassocotnriction drug ( midodrine+ florinef). This might be a great clue for you!!!!
     
    lafarfelue likes this.
  8. pattismith

    pattismith Senior Member

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    seems great, I will try to try it!
     
  9. *GG*

    *GG* Senior Member

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    Concord, NH
    Welcome to the Forum, would be great if you did not have this dreaded misunderstood illness!

    I have been riding bicycles for over 30 years now, still do, even though I am moderately impacted. I had the 2 day in a row exercise test done, on a bicycle, back in 2010. I only stopped riding my bike back in 2009 (or was it 2008?) , after suffering a big crash, exacerbation of symptoms!

    Not sure why I am not severe like happens to many who continue to push themselves, but I do rest quit a bit as well, sleep 8 to 12 hours a night, take oxygen with my cPAP machine.

    GG f

    PS Feel free to PM me if I don't respond here, been on this site since 2009, you can find parts of my story all over the place :)
     
  10. wastwater

    wastwater Senior Member

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    Maybe you are overdoing it still and need rest,I like cycling and considered getting an electric bike
     

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