Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
Discuss the article on the Forums.

WANTED: Databases of tests, symptoms, diagnoses, etc.

Discussion in 'Other Health News and Research' started by undiagnosed, Feb 26, 2017.

  1. undiagnosed

    undiagnosed Senior Member

    Messages:
    207
    Likes:
    316
    United States
    I am working on getting p2pdx (ZeroNet website for peer to peer medical data sharing and diagnosis) to a point where people can start using it. One area I need to work on is medical definitions which will enable computer readable data entries. Medical definitions of tests, symptoms, medications, etc. will be included in a SQLite database distributed with the website. If a user would like to add a definition that is not included, they will have to request it be added. This is primarily to ensure additions are not duplicates, spam, etc. In the future, it would be nice to have this decentralized possibly by using a blockchain. I have identified some databases to possibly pull definition data from, but I am also looking for others if anyone can recommend any. Here is what I have found so far:

    Symptoms / Diagnoses:

    ICD-10
    The ICD codes are used in EHR systems by the medical establishment. You can browse the ICD-10 using the online browser. Just start typing a search term and a list will pop up of the closest matches. The definitions may not always be the greatest. For example, if you search for "myalgic encephalomyelitis" or "chronic fatigue syndrome", you get G93.3 Postviral fatigue syndrome which is described as Benign myalgic encephalomyelitis.

    Procedures:

    ICD-10 PCS

    Genetic Tests:

    Genetic Testing Registry

    This registry has a database of genetic tests offered by various companies. It is the most complete list I could find.

    Other sources of data I am looking for:
    • Lab Test definitions w/reference ranges (major labs such as Quest, Labcorp)
    • Medications
    • Imaging Tests (partial coverage by ICD-10 PCS)
    • Vitals (partial coverage by ICD-10 PCS)

    Any other feedback is welcome. Thanks.
     
    Last edited: Feb 26, 2017
    Hutan and Valentijn like this.

See more popular forum discussions.

Share This Page