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Views on "Overcoming chronic fatigue" by Mary Burgess/Trudie Chalder

Discussion in 'General ME/CFS Discussion' started by Baboushka, Feb 25, 2014.

  1. Snow Leopard

    Snow Leopard Senior Member

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    The CBT/GET approach that is popular in the UK is often more trouble than it is worth.

    My view is that CBT can be helpful in a minority of patients who struggle with behavioural or cognitive issues, modest exercise can be helpful so long as you don't over do it (or neglect your normal day to day activities to do it), though I don't like the GET approach to this.
     
  2. taniaaust1

    taniaaust1

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    I'd be running as fast as you can from that clinic and go find yourself a proper decent specialist who understands ME (rather then only having an understanding of "chronic fatigue" such as Trudie Chandler which isnt ME/CFS).

    People at this website can tell you decent specialists if you ask ones from where you are. Too many of us have been made worst by bad doctors or by given the wrong advice eg GET/CBT. I myself did too much early illness as no doctor gave me good advice to rest and not push myself.. so then ended up completely bedbound with this illness with my own 9-10year old at the time having to become my carer.

    I guess they must be getting desperate if they are attempting to brainwash people into thinking its their fault and thinking by getting them to read this book before they even attend the appointment. Im curious, was the book loaned to you or did they also get you to buy it?
    ..........

    The best thing you could probably read to educate yourself better before your appointment is to check out the Canadian consensus ME/CFS document for medical practioners (but its simple enough for even us to understand and has a chart which shows how how different our bodies react physiologically wise to exercise references included) http://sacfs.asn.au/download/consensus_overview_me_cfs.pdf (and also the newish International ME one when you have timehttp://sacfs.asn.au/download/me_international_consensus_primer_for_medical_practitioners.pdf) .. these were done by doctors/specialists which are experts in ME/CFS and not the ones we call psychobabblers like trudie chandler. Please at least check out the Canadian Consensus one as it will teach you so much about this illness... and does have references you seek!! I think its the best starting point for someone new to ME/CFS.

    Take care.. bad doctors can cause a lot of damage both to your mental health and to your physical health. People have become suicidal after doctors have implied they need to try harder or lazy and have not listened to how sick they are.
    ............

    edit what I screw up.. I wrote psychologically instead of physiologically. Glad I saw that error
     
    Last edited: Feb 26, 2014
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  3. Baboushka

    Baboushka

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    Thanks everyone, your comments are all very helpful and definitely food for thought. I'll certainly check out the Canadian document you mention taniaaust1. When I last saw my gp (months ago) and asked him his thoughts on Me/cfs, he said the way to get better was cbt/get (I needed to confirm where he stood on this). He acknowledges I have this condition - we had quite a debate about it and his view is that information is valid if it is published in the BMJ - it appears that cbt/get are the therapies recommended by NICE and the BMJ :(
     
  4. peggy-sue

    peggy-sue

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    Your gp is misguided.
     
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  5. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    I also sometimes get, or got, nausea, loose bowels, insomnia, polyuria, mineral deficiency (especially sodium), dizziness, blurred vision, cramp, numbness, tachycardia...not much pain though (apparently I am lucky in this). Fatigue is nowhere near my worst PEM symptom.
     
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  6. peggy-sue

    peggy-sue

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  7. SOC

    SOC Senior Member

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    Yes, an important point that most people miss but is made clear in the ICC is that PEM (or Post-exertional Neuroimmune Exhaustion as it's called in the ICC) means an exacerbation of many symptoms not just fatigue and muscle aches.

    Flu-like symptoms are common as are GI and endocrine problems MeSci mentioned. The phraseology the ICC uses is "prominent symptoms in the neuroimmune regions". That's not just next day tiredness and muscle aches.
     
    Last edited: Feb 26, 2014
  8. peggy-sue

    peggy-sue

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    I have tracked down (from the lovely Dolphin's signature) a link to some videos nurse Chalder has done, to teach gps how to flannel you. You might find them interesting.
    Forewarned is forearmed.;)

    http://forums.phoenixrising.me/inde...sh-gps-on-how-to-deal-with-cfs-patients.3079/

    I don't ever refer to Chalder as being a "professor". She is a nurse, that is all she is qualified in. Her promotions up the ranks of "academia" have all been personally engineered by her bosses, because her face fitted. She has not actually done the work required to merit the titles she has.
     
  9. peggy-sue

    peggy-sue

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    Min likes this.

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