“News from NIH: Version 1.0 of ME/CFS Common Data Elements now available
Version 1.0 of the NINDS/CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements is now available: https://www.commondataelements.ninds.nih.gov/MECFS.aspx#tab=Data_Standards
Regards,
The Trans-NIH ME/CFS Working Group”
I received this e-mail quoted above from the Trans NIH ME/CS Working Group on 2/28/2018. Click on this link to read Version 1.0 of the Common Data Elements developed for ME/CFS.
https://www.commondataelements.ninds.nih.gov/MECFS.aspx#tab=Data_Standards
If another thread has not already been started to review this version of the Common Data Elements, you can use this thread to comment or raise questions you may have about this topic. For reference purposes, here are prior threads where discussion about the “draft” Common Data Elements were discussed. (If I have missed any threads with comments/questions about the CDE’s, please tag me in this thread and I will edit the list identified below.)
1) http://forums.phoenixrising.me/inde...ure-research-action-needed.57023/#post-947016
and
2) http://forums.phoenixrising.me/inde...-draft-see-what-you-can-do.57459/#post-952562
and
3) http://forums.phoenixrising.me/inde...ments-fatigue-me-cfs-cde-public-review.57273/
Wally
Version 1.0 of the NINDS/CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements is now available: https://www.commondataelements.ninds.nih.gov/MECFS.aspx#tab=Data_Standards
Regards,
The Trans-NIH ME/CFS Working Group”
I received this e-mail quoted above from the Trans NIH ME/CS Working Group on 2/28/2018. Click on this link to read Version 1.0 of the Common Data Elements developed for ME/CFS.
https://www.commondataelements.ninds.nih.gov/MECFS.aspx#tab=Data_Standards
If another thread has not already been started to review this version of the Common Data Elements, you can use this thread to comment or raise questions you may have about this topic. For reference purposes, here are prior threads where discussion about the “draft” Common Data Elements were discussed. (If I have missed any threads with comments/questions about the CDE’s, please tag me in this thread and I will edit the list identified below.)
1) http://forums.phoenixrising.me/inde...ure-research-action-needed.57023/#post-947016
and
2) http://forums.phoenixrising.me/inde...-draft-see-what-you-can-do.57459/#post-952562
and
3) http://forums.phoenixrising.me/inde...ments-fatigue-me-cfs-cde-public-review.57273/
Wally