Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
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The difficulty of intense social interaction...

Discussion in 'General ME/CFS Discussion' started by Sandman00747, Mar 13, 2017.

  1. Sandman00747

    Sandman00747

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    United States, Kansas

    while in the middle (I hope the middle) of a major flare is a tough proposition for me. A lot of my friends and family have been telling me that lately I've been quite grumpy, grouchy, short-tempered, contrary, yada, yada, yada, and I know they're right.

    I sometimes wish that they could "walk a mile in my shoes" so they could just have a small taste of the kind of self discipline and downright guts it takes to still go out in the world and try to function in a somewhat "normal" manner with this malady.( And yes, I know I am blessed with not being bed or housebound.)

    But, that isn't going to happen so I must try to harness yet more resolve and try to be a kinder person through this flair. But it's a bad one as I know you guys can relate to. It's hammering me and strangely I keep hearing this " earworm " piece of music running through my head while dealing with this particular bout of illness.

    " I used to be such a sweet, sweet thing 'til " IT " got a hold of me." Oh, it's so true I swear! I've become that which I detest, " an old grouch!"
     
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  2. Mohawk1995

    Mohawk1995 Senior Member

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    There is an old proverb that says "The words of those in despair belong to the wind" That does not mean that anyone (especially in a flair) should not be listened to. It does mean to me, however that I should take into account that the words that are coming out of someone's mouth may be highly influenced by the "despair" or difficulty that person is facing. We do not live in a culture that gives much grace to others especially in social media. I think the world would be a better place if we did.

    @Sandman00747 I don't know you circumstances specifically, but it sounds like in you heart you desire to be kind toward others and it is just very hard to do at times. It is ok to be there when you are suffering with "IT". Don't judge yourself too harshly and try not to judge others around you who may have a negative reaction to what you are saying. They can't possibly understand completely what you are going through. The most important part is the heart. Try to look for that!

    PS I find your honesty and openness to share quite likeable even if you have become an "Old Grouch" ;)
     
  3. slysaint

    slysaint Senior Member

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    W. Sussex UK
    is THAT why the cute puppy pic has gone?
     
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  4. Sandman00747

    Sandman00747

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    United States, Kansas
    He will return. I was told years ago by a brilliant doc that one should rotate little things in their life as often as they can to reduce the monotony of daily life with a chronic illness. I have come to be a big believer in those words. Not to worry, my little wet rat " Blaze" will return soon!
     
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  5. Sandman00747

    Sandman00747

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    A humbling and kind response @Mohawk 1995. Actually I don't mind a bit of howling into a headwind. I think often times others gain strength from words of other's struggles as they don't feel so alone and isolated with this illness. But make no mistake. I've gone 22-23 years. I'm not quitting now. Not by a long shot!
     
    Jan likes this.
  6. Hip

    Hip Senior Member

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    I had this issue for many years (and still do to an extent). I think it is not caused by the position we find ourselves in with ME/CFS, but rather can simply be an accompanying symptom of ME/CFS.

    "Grumpy, grouchy, short-tempered, contrary" might be summed up as irritability, which is a medical symptom. The CDC case definition of CFS mentions irritability as a possible accompanying CFS symptom.


    I found very low dose amisulpride an excellent treatment for my irritability symptoms. This drug transforms me from a a highly grumpy and irritable person, to someone who is bordering on being human again. See here:

    List of Biochemical Causes for Irritability
     
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