Discussion in 'General ME/CFS Discussion' started by Valentijn, Jul 16, 2013.
I(83%)N(56%)T(12%)J(67%). This is from the online MB facsimile that was posted here a while back.
mine was, I(44%) N(12%) F(62%) P(11%)
lol sounds fun.
I always get excited while waiting for tests which I think may actually show up something for once.
Little Bluestem, your result and that of SOC are now recorded in the main list from last Sunday:
Js, Js, everywhere!
I know your question was put to Moxie.. but Ive found that animals can certainly be introverts or extraverts like people are. When I was caring for some rescued kittens there was both extremes of this in the same litter, very different personalities there. Anyone wanting to get a pet should not just go by looks but consider what personality they would like their animal to be too.
I wonder if extraverted people like extraverted animals and visa versa? (it wouldnt surprise me if that was the case).
I agree completely with what you said here.. GPs do seem to be able to handle acute things better then chronic ones in my experience too (LOTs of experience in doctors lol). The irronic thing is that when we do end suddenly having very major symptoms and have to go to the ER due to them, we are often told that they wont help as our illness is "chronic" and to "go and see your GP/MP".
Those with our illness just fall into a big hole in the medical system.. a hole in which specialists are not being trained to deal with us, doctors cant handle our chronic illness and hospitals wont help us even when someone flares and gets extreme as they arent for those who have chronic illness. A system which hugely lets us down and then doctors wonder why we are such an upset and angry patient group... doh.
If we didnt have to deal with such a dysfunctional system not set up for our illness things would be much better. How many severe other illnesses dont have a specialist field they actually come under? is there any other illnesses like this?
ME is meant to be Neurological according to WHO but neurologists arent even trained in our illness.. we dont even have a medical field area in which specialists are trained to deal with us except some would say psychologists who had training in CBT and we all know that doesnt do much for our symptoms at all, that's a bandaide for how we may feel about our illness rather then actually try to treat it.
The medical profession needs to stop blaming us and instead take this illness seriously and give it a speciality field be actually properly come under be it immune, neurological, autonomic or whatever (or even create a brandnew field for it eg neuroimmune, which may even be a better idea) and actually then train specialists in it!!!
Till that is done.. we have no hope of having the dysfunction medical system we find ourselves in, becoming better. Till we have an offically recognised "place" we wont fit anywhere.
I was watching a set of videos on methylation last night by an ENT surgeon who has transferred over to working with kids with autism and possibly also with adults with CFS-ME (I'm not precisely sure what he does - I had to listen to his videos while I was doing other things --- because I was about to flip out and scream due to the number of times he repeated, "Do you get me?" "Do you understand yet?" - he said those about 3 times per minute, for over an hour! Therefore, I don't really recommend the videos. I was just watching them to see his explanation and approach to methylation. He's got his own private methylation supplement range, etc. (Dr. Kendal Stewart, the link is the last one on my list of methylation links.))
I also watched a 5-min clip where he was addressing a medical conference.
In both those videos, he said to the audience that most doctors do not like it when patients come in with a host of chronic problems or a new condition that is hard to explain or that is hard to do anything concrete for, like dizziness (or something). He said they dread to see such patients.
He asked the doctors at the medical conference if any of them were glad to see patients with those issues walk in the door, and only 1 (in presumably a large audience) raised his hand. (Later, 2 more raised their hands.)
He was chuckling about it. (Oh ha ha ha, how silly. )
It takes a special kind of person to want to carry on investigating after some dead ends, to empathize, to listen closely, to spend adequate time.
This kind of person is rare in the population generally, and many of them probably are turned off by a career in medicine because of all the hoops to jump through - high gpa throughout high school and college, heavy concentration on science courses to the exclusion of other subjects, financial cost of medical school, etc., and the inhumane work requirements - in the US educational system anyway (during those years when they have to work and study all hours of the day and night; right now I don't remember what it's called) - and after they get through all that, then have to deal with insurance companies' inane policies and definitions, tiptoe around malpractice issues, fend off (or cultivate) shady pharma sales techniques etc., be involved in ridiculous, backwards payment/billing processes, try to keep up to date with the ever-expanding amount of new publications and treatments, and they are middle-aged by then and often don't know their own children very well, might be tempted by extra-marital entanglements, face one of the highest rates of depression and suicide of any profession, etc. I read a few years ago about a study that showed that something like 50% of American doctors would have chosen a different career, if they could go back and start again, but now they feel trapped and have to stay in medicine.
It is a wonder that there are any caring, patient, curious, undaunted, tenacious doctors around...
and the few who are like that probably charge a fortune, and aren't accepting new patients.
Hi, INTP here! Married to one, too... means a couple of wacky nerds that never get anything done!
Yay! Another INTP.
If the editing window is not closed, I will add you to the big list from last Sunday (page 5 of this thread).
I had this for seven years running when my doctors was telling me "I was too aware of my symptoms" or "one things at once". Took me 12 years to get diagnosed because he was missing the big picture. What kind of idiot would knowingly tell a doctor half their symptoms, or idiot doctor want to hear incomplete symptoms.
Rant on girl, rant on... !!!!
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