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Sept 10: CDC 'conference call' including Unger and Lipkin

Discussion in 'General ME/CFS News' started by Sasha, Aug 14, 2013.

  1. dasiymay

    dasiymay Senior Member

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    Hi, does anyone know if you can use Skype for such calls?

    And would the number work from overseas or is it a kind of US only free phone number?

    Even if all Lipkin does is to explain how his research is going, I reckon it is really significant that the CDC have asked him to speak. In the not too distant past the idea of the CDC having someone like him speak, someone who views ME/CFS as a physical disease, would have been unthinkable. So even if we get no substantial news from Lipkin, I think this is really quite a turn around for the CDC.
    beaker and Bob like this.
  2. dasiymay

    dasiymay Senior Member

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    Bob, do you know what we would be charged for this call from the UK? Or is this a sort of free phone number?

    And is it 8pm UK time please?
  3. Nielk

    Nielk

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    It's a toll free number.
  4. Sasha

    Sasha Fine, thank you

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  5. Kina

    Kina Moderation Team Lead

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    The threads have been merged.

    Thanks Sasha. :)
    beaker and Sasha like this.
  6. readyforlife

    readyforlife Senior Member

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    Once again I'm hoping for something good. I thought that if the CDC is having this phone conference call it has to be something ground breaking. But I looked on the CDC website and the last time they had one of these phone conference calls was in January and it was with Dr. Klimas and all they talked about is exercise and such. Love Dr. Klimas and the article I read about exercise was interesting, but not life changing. So I have my fingers crossed this isn't something like that and something that is life changing. I know i'm getting greedy but I can't help myself, life just seems to be going by sooo fast. :)
  7. Sasha

    Sasha Fine, thank you

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    I'm managing my expectations for this one!

    I think that if Lipkin had anything big to say he'd announce it with a press conference and that he'd do it the day his publication came out. I don't think there's going to anything gigantic here - at best we might get some hints, is all I'm thinking.

    I hope to be wrong! :)
    SOC, readyforlife and Nielk like this.
  8. Nielk

    Nielk

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    I totally agree. If this was anything major, Lipkin would not choose this modality to make an announcement.
    beaker, readyforlife and Sasha like this.
  9. Bob

    Bob

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    It's either 8pm or 9pm UK time. Probably 8pm. (They advertised their time as EST, but we think they mean EDT.)

    I've no idea how much it costs from the UK, and it depends on your who provides your phone service, and the package that you're on.

    BT's standard evening rate to the USA is 13.3p a min for standard phone numbers.
    I don't know how much they charge for special numbers. It might be less for a free-phone number, or more.
  10. dasiymay

    dasiymay Senior Member

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    Thanks Bob and Neilk.
  11. Legendrew

    Legendrew

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    Is anyone listening? I can't listen myself so i'm hoping someone can post updates either here or twitter. =)
    beaker likes this.
  12. Nielk

    Nielk

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    I'm in. Holding on. Music...
  13. lnester7

    lnester7 Seven

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  14. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Anyone have the email address for questions?
  15. waiting

    waiting Senior Member

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  16. lnester7

    lnester7 Seven

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    Sushi CFSPCOCAcall@cdc.gov
  17. Nielk

    Nielk

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    Topic: Infection and immunity
    Dr. Unger - welcome
    Recording is being made by CDC
    Data from multi-site study - 7 clinicians = 471 pts
    Same info that she gave at the FDA and CFSAC
  18. Nielk

    Nielk

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    Talking about educational initiatives - CME credit courses for medical practitioners - students
    aimossy likes this.
  19. Simon

    Simon

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    Had to do something else so only half listening but she said will stick to 1 day CPET test, not 2 days - but also that she had discussed this with Chris Snell who had said there would still be 'some value' in the 1 day test, despite his preference for 2 -day test
    Sasha and Nielk like this.
  20. Nielk

    Nielk

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    Dr. Lipkin - no government sponsorship
    CFS Initiative and anon. donor

    No single agent and no cause for CFS
    Some interesting leads though..search for infectious agents,

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