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Sept 10: CDC 'conference call' including Unger and Lipkin

Discussion in 'General ME/CFS News' started by Sasha, Aug 14, 2013.

  1. Sasha

    Sasha Fine, thank you

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    Just got this via Co-cure:

    MARK YOUR CALENDARS

    Tuesday, September 10, 2013
    3:00 am - 4:00 pm EST

    CDC CFS Patient-centered outreach and communication activity (PCOCA)
    Conference Call

    Call number: 888-946-3511
    Participant Code: 6029106

    Please mark your calendars for the next CDC Chronic Fatigue Syndrome
    (CFS) Patient-Centered Outreach and Communication Activity (PCOCA)
    Conference Call.


    Meeting Agenda

    3:00pm Welcome and Telephone Overview

    3:05pm Updates from CDC – Elizabeth Unger, PhD, MD
    Branch Chief, Chronic Viral Diseases Branch
    Centers for Disease Control and Prevention

    3:15pm “Infection and Immunity in CFS”
    W. Ian Lipkin, MD
    John Snow Professor of Epidemiology and Director
    Center for Infection and Immunity
    Mailman School of Public Health
    Professor of Pathology and Neurology
    College of Physicians & Surgeons
    Columbia University

    3:45pm Questions from CFSPCOCACall Mailbox for Guest Speaker and CDC


    Disclaimer: Although the content of calls is directed to patients,
    caregivers, health care professionals, and other interested parties,
    CDC has no control over who participates on the conference call.
    Therefore please exercise discretion on sensitive content and
    material, as confidentiality during these calls cannot be guaranteed.

    Please note that questions for the Guest Speakers and CDC can be
    submitted only via email at CFSPCOCACall@cdc.gov. This mailbox cannot
    respond to inquires received and is in use only for the scheduled CFS
    PCOCA calls. If you would like to be added to the call list, please
    send an email to CFSPCOCACall@cdc.gov.

    Contact for CFSPCOCA Conference Call:
    CFSPCOCACall@cdc.gov
    Omar88, snowathlete, Simon and 2 others like this.
  2. Simon

    Simon

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    Thanks. How does this work - can anyone dial in, and is it recorded for others to hear later?
  3. Sasha

    Sasha Fine, thank you

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    Beats me - I don't have any details other than what was in the Co-cure email.

    Anybody else know?
  4. Nielk

    Nielk

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    I think anyone can call in. I'm not sure if there is a limit. We can only listen in. (they can't hear us) Questions need to be e-mailed in advance. here is no recording of it but. It is not recorded but, CDC provides an overview of it like this from the last call.
    Simon likes this.
  5. Nielk

    Nielk

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    The fact that Ian Lipkin is participating is very exciting and impressive.
    vli, WillowJ, Kati and 1 other person like this.
  6. Bob

    Bob

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    The CDC have published the info on their website now, with the same details as the opening post.
    There's not any new info in it.
    http://www.cdc.gov/cfs/meetings/cfspcoca.html

    Does anyone yet know if it's necessary to register in order to participate?
  7. WillowJ

    WillowJ Senior Member

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    Registration is not required.


    hey, they fixed the am/pm issue. :)
    Bob likes this.
  8. Firestormm

    Firestormm Content Team Lead

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    Don't suppose they will publish a recording/transcript? :)
  9. Bob

    Bob

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    Edit: See Willow's post, here. It looks like they probably mean EDT, not EST.

    Tuesday, September 10, 2013
    3:00 pm - 4:00 pm EST

    I might have made a mistake here, so I'd appreciate it if someone could double-check it...

    If they're using EST, then I've done some time conversions for 3pm EST...

    UK 9pm (21:00)
    Autralia Sydney 6am (06:00)
    Belgium Brussels 10pm (22:00)
    Canada Ottawa 4pm (16:00)
    Netherlands Amserdam 10pm (22:00)
    Norway Oslo 10pm (22:00)

    (Apologies to anyone I've missed!)

    http://www.timeanddate.com/worldclo...1=377&p2=136&p3=240&p4=48&p5=188&p6=16&p7=187


    But if they mean EDT, then 3pm EDT is as follows:

    UK 8pm (20:00)
    Autralia Sydney 5am (05:00)
    Belgium Brussels 9pm (21:00)
    Canada Ottawa 3pm (15:00)
    Netherlands Amserdam 9pm (21:00)
    Norway Oslo 9pm (21:00)

    http://www.timeanddate.com/worldclo...p1=25&p2=136&p3=240&p4=48&p5=188&p6=16&p7=187
  10. lnester7

    lnester7 Seven

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    still 3pm EST??? I am confused for EST time.
  11. Bob

    Bob

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    EST is Eastern Standard Time, USA.
    But the CDC is on EDT (daylight saving time) on 10th Sep, so it's possible that they've got confused.
    WillowJ likes this.
  12. lnester7

    lnester7 Seven

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    Bob in crash here :oops: please somebody just tell me the time in EST when you all figure it out :ill:

    Thank you in advance!
  13. Bob

    Bob

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    Oh, I see what you mean now.

    3pm

    Hopefully.
    lnester7 likes this.
  14. WillowJ

    WillowJ Senior Member

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    Some people just put EST for Eastern time zone regardless of whether it's standard time or daylight time at the moment. And when i first saw the date, I looked it up and thought Daylight Savings time would end before the call (turns out I was confused).

    That calculator Bob linked to automatically adjusts for Daylight Savings, so if we put it in as a fixed date and display the results in the world clock, it should have the correct time for everyone:
    http://www.timeanddate.com/worldclock/fixedtime.html?msg=CDC PCOCA Conference Call with Lipkin and Unger&iso=20130910T15&p1=25&am=45

    edit: I see he's already put it in as a fixed date. :) /edit

    Atlanta * Tue 3:00 PM
    Madrid * Tue 9:00 PM
    Auckland Wed 7:00 AM
    Brisbane Wed 5:00 AM
    Buenos Aires Tue 4:00 PM
    Oslo * Tue 9:00 PM
    Calgary * Tue 1:00 PM
    Perth Wed 3:00 AM
    Cape Town Tue 9:00 PM
    Seattle * Tue 12:00 Noon
    Singapore Wed 3:00 AM
    London * Tue 8:00 PM

    more cities at the link
    snowathlete, Simon, heapsreal and 3 others like this.
  15. Andrew

    Andrew Senior Member

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  16. vli

    vli

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    I've never tried this before--so do I call in, punch in the passcode and get to listen?

    thx
  17. Nielk

    Nielk

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    Yes.
  18. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    Just to confirm, is this the pathogen study results??
  19. Bob

    Bob

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    I doubt it. They'd have to publish before they revealed any results. And they've said they haven't yet finished their study anyway. But he might give some interesting hints and insights into the pathogen study.
    beaker, vli, Sasha and 2 others like this.
  20. August59

    August59 Daughters High School Graduation

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    Even if they haven't found anything, I'm glad they are taking the time to hopefully discuss where they are at. How the deep sequencing is going plus if the new assays are performing as hoped.

    He might want to have some discussion about this crazy idea of having the city council derive a new definition for our disease??
    heapsreal likes this.

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