• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Sept 10: CDC 'conference call' including Unger and Lipkin

Sasha

Fine, thank you
Messages
17,863
Location
UK
Just got this via Co-cure:

MARK YOUR CALENDARS

Tuesday, September 10, 2013
3:00 am - 4:00 pm EST

CDC CFS Patient-centered outreach and communication activity (PCOCA)
Conference Call

Call number: 888-946-3511
Participant Code: 6029106

Please mark your calendars for the next CDC Chronic Fatigue Syndrome
(CFS) Patient-Centered Outreach and Communication Activity (PCOCA)
Conference Call.


Meeting Agenda

3:00pm Welcome and Telephone Overview

3:05pm Updates from CDC – Elizabeth Unger, PhD, MD
Branch Chief, Chronic Viral Diseases Branch
Centers for Disease Control and Prevention

3:15pm “Infection and Immunity in CFS”
W. Ian Lipkin, MD
John Snow Professor of Epidemiology and Director
Center for Infection and Immunity
Mailman School of Public Health
Professor of Pathology and Neurology
College of Physicians & Surgeons
Columbia University

3:45pm Questions from CFSPCOCACall Mailbox for Guest Speaker and CDC


Disclaimer: Although the content of calls is directed to patients,
caregivers, health care professionals, and other interested parties,
CDC has no control over who participates on the conference call.
Therefore please exercise discretion on sensitive content and
material, as confidentiality during these calls cannot be guaranteed.

Please note that questions for the Guest Speakers and CDC can be
submitted only via email at CFSPCOCACall@cdc.gov. This mailbox cannot
respond to inquires received and is in use only for the scheduled CFS
PCOCA calls. If you would like to be added to the call list, please
send an email to CFSPCOCACall@cdc.gov.

Contact for CFSPCOCA Conference Call:
CFSPCOCACall@cdc.gov
 

Sasha

Fine, thank you
Messages
17,863
Location
UK
Thanks. How does this work - can anyone dial in, and is it recorded for others to hear later?


Beats me - I don't have any details other than what was in the Co-cure email.

Anybody else know?
 

Nielk

Senior Member
Messages
6,970
I think anyone can call in. I'm not sure if there is a limit. We can only listen in. (they can't hear us) Questions need to be e-mailed in advance. here is no recording of it but. It is not recorded but, CDC provides an overview of it like this from the last call.
 

WillowJ

คภภเє ɠรค๓թєl
Messages
4,940
Location
WA, USA
Registration is not required.


Reminder: Please join us for the CDC CFS PCOCA Call. Registration/sign-up is not required. Use the call number and participant code to join the call at 3pm on Tuesday, September 10, 2013.

MARK YOUR CALENDARS

Tuesday, September 10, 2013
3:00 pm * 4:00 pm EST

hey, they fixed the am/pm issue. :)
 

Bob

Senior Member
Messages
16,455
Location
England (south coast)
Edit: See Willow's post, here. It looks like they probably mean EDT, not EST.

Tuesday, September 10, 2013
3:00 pm - 4:00 pm EST

I might have made a mistake here, so I'd appreciate it if someone could double-check it...

If they're using EST, then I've done some time conversions for 3pm EST...

UK 9pm (21:00)
Autralia Sydney 6am (06:00)
Belgium Brussels 10pm (22:00)
Canada Ottawa 4pm (16:00)
Netherlands Amserdam 10pm (22:00)
Norway Oslo 10pm (22:00)

(Apologies to anyone I've missed!)

http://www.timeanddate.com/worldclo...1=377&p2=136&p3=240&p4=48&p5=188&p6=16&p7=187


But if they mean EDT, then 3pm EDT is as follows:

UK 8pm (20:00)
Autralia Sydney 5am (05:00)
Belgium Brussels 9pm (21:00)
Canada Ottawa 3pm (15:00)
Netherlands Amserdam 9pm (21:00)
Norway Oslo 9pm (21:00)

http://www.timeanddate.com/worldclo...p1=25&p2=136&p3=240&p4=48&p5=188&p6=16&p7=187
 

Seven7

Seven
Messages
3,444
Location
USA
Bob in crash here :oops: please somebody just tell me the time in EST when you all figure it out :ill:

Thank you in advance!
 

WillowJ

คภภเє ɠรค๓թєl
Messages
4,940
Location
WA, USA
Some people just put EST for Eastern time zone regardless of whether it's standard time or daylight time at the moment. And when i first saw the date, I looked it up and thought Daylight Savings time would end before the call (turns out I was confused).

That calculator Bob linked to automatically adjusts for Daylight Savings, so if we put it in as a fixed date and display the results in the world clock, it should have the correct time for everyone:
http://www.timeanddate.com/worldclock/fixedtime.html?msg=CDC PCOCA Conference Call with Lipkin and Unger&iso=20130910T15&p1=25&am=45

edit: I see he's already put it in as a fixed date. :) /edit

Atlanta * Tue 3:00 PM
Madrid * Tue 9:00 PM
Auckland Wed 7:00 AM
Brisbane Wed 5:00 AM
Buenos Aires Tue 4:00 PM
Oslo * Tue 9:00 PM
Calgary * Tue 1:00 PM
Perth Wed 3:00 AM
Cape Town Tue 9:00 PM
Seattle * Tue 12:00 Noon
Singapore Wed 3:00 AM
London * Tue 8:00 PM

more cities at the link
 

vli

Senior Member
Messages
653
Location
CA
I've never tried this before--so do I call in, punch in the passcode and get to listen?

thx
 

August59

Daughters High School Graduation
Messages
1,617
Location
Upstate SC, USA
Even if they haven't found anything, I'm glad they are taking the time to hopefully discuss where they are at. How the deep sequencing is going plus if the new assays are performing as hoped.

He might want to have some discussion about this crazy idea of having the city council derive a new definition for our disease??