Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Sense about Science (UK) correspondence

Discussion in 'General ME/CFS News' started by Yogi, Oct 17, 2016.

  1. Yogi

    Yogi Senior Member

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    Forum member @JohntheJack had been corresponding with Sense about Science regarding their silence on PACE trial over the last year.

    https://johnthejack.com/2016/10/17/sense-about-science-the-pace-trial-and-me/

    Correspondence email:

    https://justpaste.it/xnq8

    PACE was supported by many associated establishment organisations which made it more difficult to challenge if not impossible.

    These organisations and individuals need to for their own long term survival and credibility disassociate and disown the Wessely school.

    However I am sure many of these organisations will continue to ignore and stonewall until they are forced to do the right thing and 'stand up for science'.

    Whether it achieves anything or not - it is very important to have a complete record of this sordid issue and who aided and abetted the fraudulent PACE trial and did what and when and why.

    Thanks @JohntheJack for doing that and your perseverance and tenacity with following up and helping with these important PACE issues. I salute you!!


    See also:
    http://forums.phoenixrising.me/inde...wins-prize-for-standing-up-for-science.20231/
     
    Last edited: Oct 17, 2016
  2. worldbackwards

    worldbackwards A unique snowflake

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    Earth
    tfw your boss's boss based his highly successful career on a turkey and no-one's allowed to admit it.
     
  3. Esther12

    Esther12 Senior Member

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    Always worth trying to get more of a paper trail for these sorts of things. Thanks!
     
  4. BurnA

    BurnA Senior Member

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    This and similar correspondence is very important.

    I would love to see a campaign to rescind SWs Maddox prize in light of recent events.

    I am not sure what became of David Tullers nomination this year but maybe we could nominate the ME patient community next year for standing up for science in the face of adversity.
     
  5. worldbackwards

    worldbackwards A unique snowflake

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    Earth
    *sound of hell freezing over*
     
    Jan, flybro, JohntheJack and 2 others like this.
  6. BurnA

    BurnA Senior Member

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    Haha - I did say nominate ! No guarantee of anything beyond that I'm afraid. But I'm a believer in sticking my neck out :)
     
  7. JohntheJack

    JohntheJack Senior Member

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    Swansea, UK

    Thanks, Yogi. We at least now have on record that the organization Wessely founded considers the trial he helped design to be flawed.
     
    TiredSam, Cheshire, Jan and 7 others like this.

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