Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
Discuss the article on the Forums.

Phoenix Rising makes it to Pubmed!

Discussion in 'Latest ME/CFS Research' started by msf, Jul 1, 2016.

  1. msf

    msf Senior Member

    Messages:
    3,188
    Likes:
    4,454
  2. Invisible Woman

    Invisible Woman Senior Member

    Messages:
    1,212
    Likes:
    7,414
    Well... it's hard to know.

    Things have moved forward. 20 years ago pwME were told not to contact patient groups. When patients were involved / in contact with other pwME this was considered to be a perpetuating factor in their condition and meant that they were less likely to recover.

    My own opinion is that "they" didn't want us talking to each other as the more we learned the less likely we were to believe the psychobabble BS.

    This abstract doesn't comment on that (which might be good in itself). Perhaps we've moved on a little?
     
  3. Effi

    Effi Senior Member

    Messages:
    1,491
    Likes:
    4,552
    Europe
  4. SilverbladeTE

    SilverbladeTE Senior Member

    Messages:
    2,909
    Likes:
    3,560
    Somewhere near Glasgow, Scotland
    and vicious tyrants don't like resistance movements....
     
    ukxmrv, Sean, GreyOwl and 3 others like this.
  5. TigerLilea

    TigerLilea Senior Member

    Messages:
    1,136
    Likes:
    3,405
    Vancouver, British Columbia
    The belief is that you come to rely on your online friendships in the forum and then there is no incentive for a person to want to get better from their illness. This doesn't just apply to CFS/ME. I've also read this about breast cancer survivors. Absolute nonsense!
     
  6. *GG*

    *GG* Senior Member

    Messages:
    6,138
    Likes:
    4,734
    Concord, NH
    Yeah, that's total crap. I have learned of supplements to consider. Heard about Oxygen to help as well. Probably heard of LDN 1st on this site.

    I do better than most, and stick around to offer any insight I might have. And to stay abreast of the more recent news and try to help with advocacy!

    GG
     
  7. A.B.

    A.B. Senior Member

    Messages:
    3,751
    Likes:
    23,188
    All roads lead to Rome. And all psychosocial narratives lead to patients being portrayed as needing therapists. They secretly dream about controlling the lives of vulnerable patients.
     
    Valentijn likes this.

See more popular forum discussions.

Share This Page