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Negotiating trust on health-related forums

Discussion in 'Other Health News and Research' started by Effi, Jun 24, 2016.

  1. Effi

    Effi Senior Member

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    Not very interesting, but at least it looks like pretty realistic information. Did any PR members take part in this study?

    (paywalled) http://www.sciencedirect.com/science/article/pii/S0277953616303136

     
    Dolphin, Snow Leopard, MEMum and 8 others like this.
  2. valentinelynx

    valentinelynx Senior Member

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    to see full text of most paywalled articles, use sci-hub.bz. For this article, see here.
     
  3. Mary

    Mary Senior Member

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    Just wondering what is a "contested" vs. "noncontested" LTC? Of course I'm presuming they mean illnesses which are legitimized, or not, by the medical profession at large, and we know where we stand, but it would have been nice if they had said exactly what they mean. Also note they use the word "condition" as opposed to illness - a condition can be anything - having red hair, etc. etc.

    They seem to have waffled so much on the very terms they use as to almost make their conclusions meaningless; but it is better than saying people go to on-line forums to find support for their delusions.
     
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  4. undiagnosed

    undiagnosed Senior Member

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    Thanks! I hadn't heard of this and was able to access a paper I've been trying to get a hold of for a while.
     
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  5. Snow Leopard

    Snow Leopard Hibernating

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    The article challenges the belief of some academics that information on the internet is dangerous, because it is usually of low quality and people will just believe any old shit. The truth is that exposure to variability in quality leads us to develop better faculties to sort the BS from valuable information and some of the things reported in the interviews in the study reflects that.
     
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  6. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    :music:I just dropped in
    To see what condition my condition was in. :music:


    {If your too young for this to make sense, just ignore it. (Not that I'm old or anything)}
     
  7. undiagnosed

    undiagnosed Senior Member

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    It makes me think of The Big Lebowski
     
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  8. Mary

    Mary Senior Member

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    I remember! :D
     
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  9. Dolphin

    Dolphin Senior Member

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    This paper is now open access.
     
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  10. Tom Kindlon

    Tom Kindlon Senior Member

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    Brady 2016.png

     
    Last edited: Feb 12, 2017
    barbc56 likes this.
  11. Tom Kindlon

    Tom Kindlon Senior Member

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  12. Tom Kindlon

    Tom Kindlon Senior Member

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    This is a sympathetic article. There is no psychobabble (or similar) about ME/CFS nor bashing of forums.
     
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  13. Tunguska

    Tunguska Senior Member

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    The net product (or root cause, poor choice of words) is an entire system (medical + extra) that treats grown adults like children (and then fails them). Any time I have to play along with that I die a little inside.
     
    Last edited: Feb 12, 2017

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