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PACE Trial and PACE Trial Protocol

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Sean

Senior Member
Messages
7,378
Jonathan Edwards said:
Everybody knows the problems. The question is do you carry on saying 'ah well this is the best we can do in psychiatry'...
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If there are inherent methodological and epistemological limits to psych studies, then so be it. But a simple nod of acknowledgement from them about the problem is not good enough.

The claims they can make to reliability, explanatory and therapeutic power, and authority must also be reduced in proportion.
 
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Dolphin

Senior Member
Messages
17,567
For what it is worth:
Cf3uDzCUAAAfoU4.jpg

From:
https://twitter.com/i/web/status/719993266876391424
 
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Dolphin

Senior Member
Messages
17,567
A Norwegian journalist, Jørgen Jelstad, has written what I think is a very good article on the PACE Trial*.

Among other things, he defends critics of the trial.

English translation:
http://translate.google.com/transla...a=X&ei=SHCLUK-9KMfQyAGQvICgBg&ved=0CCgQ7gEwAQ

Norwegian: https://debortgjemte.com/2016/04/26/hva-om-pasientene-har-rett-kristian-gundersen/

PR thread:
http://forums.phoenixrising.me/inde...e-right-kristian-gundersen.44257/#post-719544

Also discussed here: http://forums.phoenixrising.me/inde...y-supportive-of-pace.44177/page-4#post-719522 and subsequent posts.
 
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Dolphin

Senior Member
Messages
17,567
(Not that important)

https://soundcloud.com/kplyley/may-the-12th-be-with-you

May 12th is the International Day of Awareness for ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), a gravely misunderstood neurological disease. Up to 598,000 Australians live with ME/CFS, yet there is very little research funding or specialist healthcare available for them. How is such a devastating disease so overlooked? Kaitlyn Plyley investigates in this special episode of Just A Spoonful, 'May The 12th Be With You'. For anyone who ever asked, "Where's the Serial about why I'm still sick?"

Show notes: justaspoonfulpodcast.com
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Among other people, she interviews Nathan Butler, a GET therapist from the PACE Trial.
He starts talking at about 14 minutes. I don't find it that interesting and am concerned some people might be taken in by his spin so won't be highlighting it widely I think. He works now privately as an exercise therapist.

Afterwards she talks about people become deconditioned from months of bed rest at the start but I actually don't think that is how a lot of people behave in the early period: it's a stereotype which isn't true in a lot of cases.
 
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Chrisb

Senior Member
Messages
1,051
Dolphin said:
Afterwards she talks about people become deconditioned from months of bed rest at the start but I actually don't think that is how a lot of people behave in the early period: it's a stereotype which isn't true in a lot of cases.
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This suddenly made me remember the old line "The future is certain, only the past is unpredictable". Just why a soviet era joke should come to mind I cannot say.

They take us for fools in thinking that we cannot tell the difference between a little deconditioning and serious illness.
 
Hutan

Hutan

Senior Member
Messages
1,099
Location
New Zealand
Dolphin said:
Among other people, she interviews Daniel Butler, a GET therapist from the PACE Trial.
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It's Nathan Butler. We've talked about him on this thread.
http://forums.phoenixrising.me/inde...ustralia-cbt-and-get.43791/page-2#post-718858
When I last looked, Emerge, the patient organisation for ME/CFS in a number of Australian states, was promoting Nathan's clinic (which is in Melbourne, Australia) on its website.

Dolphin said:
am concerned some people might be taken in by his spin so won't be highlighting it widely I think.
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Yes, good plan.
 
D

Dolphin

Senior Member
Messages
17,567

https://twitter.com/i/web/status/734882976341893124

BRITISH ASSOCIATION FOR BEHAVIOURAL AND COGNITIVE PSYCHOTHERAPIES
Belfast
The Waterfront Conference Centre
15th-17th June 2016
44th Annual Conference

KEYNOTE SPEAKERS




http://www.babcpconference.com/programme/keynotes_2016.htm

Trudie Chalder, King’s College London

Chronic fatigue syndrome: the trials and tribulations of outcome studies

Fatigue is best viewed on a continuum with fatigue as a symptom at one end of the spectrum and chronic fatigue syndrome (CFS) associated with profound disability at the other. Up to 75% of people with CFS also have a mood disorder. Over about 25 years worth of research trial findings show that both cognitive behaviour therapy (CBT) and graded exercise therapy (GET) are moderately effective treatments for CFS that are not associated with harm. In primary care briefer interventions for fatigue have been shown to be efficacious. Self -help books are available. The aim of this lecture is to describe the overlap between fatigue and emotion, the evidence for CBT and GET, the nature of the interventions and how they work according to recent meditational analyses and long term follow ups.
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Dolphin

Senior Member
Messages
17,567
Belfast 2016
Scientific Committee

[..]

Trudie Chalder, London
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Symposium 6 – Behavioural Medicine and Child and Adolescent – Meeting Room 2B

Understanding and treating co-morbid fatigue, somatic symptoms, sleep and distress

in young people


09.50 The overlap between chronic fatigue syndrome and mood disorders

Trudie Chalder, King’s College London


Keynote Addresses 11.30-12.30


Trudie Chalder, King’s College London

Chronic fatigue syndrome: the trials and tribulations of outcome studies

Chair: Maria Loades, University of Bath

Hall 1D


Symposium 13 – Behavioural Medicine – Meeting Room 2A

Adults with Medically Unexplained Symptoms

Chair: Trudie Chalder, King’s College London

13.30 Teaching GPs cognitive and behavioural skills: General knowledge and confidence

Meenal Patel and Trudie Chalder, Kings College London

14.00 A Transdiagnostic approach to persistent physical symptoms: The description of a trial

protocol and intervention

David McCormack, South London and Maudsley NHS Trust

14.30 Health anxiety in CFS/ME: mutual maintenance?

Jo Daniels, University of Bath

15.00 The long term follow-up of the PACE trial: CBT and GET in CFS/ME patients

Trudie Chalder, King’s College London



Other CFS:

Symposium 6 – Behavioural Medicine and Child and Adolescent – Meeting Room 2B

Understanding and treating co-morbid fatigue, somatic symptoms, sleep and distress

in young people


09.25 Mood in paediatric CFS/ME - what we know and what have yet to establish

Maria Loades, University of Bath


10.15 Psychological Factors in Chronic Fatigue Syndrome & Irritable Bowel Syndrome: Similarities & Differences

Hazel Carrick and Maria Loades, University of Bath

------------
I've made a thread on this conference here:
http://forums.phoenixrising.me/inde...-psychotherapies-babcp-conference-2016.44775/
 
Daisymay

Daisymay

Senior Member
Messages
754
So Professor Trudy Chalder thinks :"Up to 75% of people with CFS also have a mood disorder."

Not if you use the CCC.

Does this statement not clearly shows how useless the Oxford definition is ( and all research based on it) and how the NIH/IOM were correct to say it should be retired?
 
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