Invisible Illness Awareness Week 2016: Our Voices Need to Be Heard
Never heard of Invisible Illness Awareness Week? You're not alone. Jody Smith sheds a little light to make it more visible
Discuss the article on the Forums.

New moles: prevention?

Discussion in 'Skeleton, Skin, Muscles, Hair, Teeth, and Nails' started by Jammy88, Feb 15, 2015.

  1. Jammy88

    Jammy88 Senior Member

    Messages:
    137
    Likes:
    126
    Italy
    Hi all,

    Sorry to bother you guys, but I hope somebody can truly help me out with this.

    Since my infection (March, 7th 2014) - whose symptoms looked very much like HIV and Rheum. diseases - I've started getting A LOT of new moles on my skin. They're very black and don't look 'friendly' at all. My dermatologist suggested an annual check since she found a lot of new moles on my skins and looked concerned. I'm 26 years-old.

    I've looked for information, however I'm not able to found anything related to moles prevention - apart from sun exposure, which I've totally avoided in the last year due to my illness. I only read that taking Vit.D could help with that.

    I'm currently taking Vit. B complex, Omega 3, CoQ10, Vit.C, Lysine, Acetyl-Carnitine, Curcumin to treat this 'viral', unknown infection.

    Symptoms have been getting better, although my impression is that I'm dealing with some form of immunosuppression. Any ideas? Your help is very appreciated.

    Blessings,

    J
     
  2. Iquitos

    Iquitos Senior Member

    Messages:
    511
    Likes:
    966
    Colorado
    @Jammy88 I don't know about prevention but I apply my medical cannabis tincture to them and they fall off in about a week. Someone else said she applies oregano oil to do the same. They're both messy and can stain fabrics, so I usually put a BandAid over the tincture. Unfortunately, I can't see or reach them all, especially the ones on my scalp.
     
    Jammy88 likes this.
  3. Butydoc

    Butydoc President

    Messages:
    597
    Likes:
    1,898
    Hi Jammy88,

    There is a condition called dysplastic nevus syndrome. I think they renamed this disorder recently. I would try and google this condition to see if it fits you. In general, any new mole (nevus) should be looked at as suspicious. I feel your dermatologist made a good recommendation in terms of follow-up observation to see if there are any changes. If you have many moles, especially new one, I would consider taking high resolution photos of your entire skin and use this as a reference to compare over time if there are any changes. The big concern is that a changing mole or a new mole could be a precursor or actual melanoma. Your dermatologist is your best bet to identify which of these moles if any are suspicious.

    Best,
    Gary
     
    Jammy88 and barbc56 like this.
  4. AkeBono

    AkeBono

    Messages:
    77
    Likes:
    24
    Hi Jammy,

    the same symptoms happened to me (and many more).
    i would continue to try finding out what type of infections do you have. in my case I noticed increased numbers of moles after a pneumonia and systemic candidiasis/gut disbiosys plus revival of EBV infection. some practitioners told could be from the overwhelmed liver (too general clue) or a methylation issue turned on by the infection.

    dont have a solution - just to tell you someone else got it :).
     
    WoolPippi and Jammy88 like this.
  5. Hip

    Hip Senior Member

    Messages:
    9,367
    Likes:
    14,725
    @Jammy88

    I noticed exactly the same phenomenon: soon after catching the virus that triggered my ME/CFS, I started to develop new moles on my skin, and quite large ones. The virus I caught was mostly likely an enterovirus, according to Dr Chia.

    Because some of the shapes of these moles were irregular, I had some concerns that they might possibly be skin cancer, so I went to see a dermatologist. The dermatologist diagnosed all these new moles as seborrheic keratosis (aka: seborrheic warts), which she said are nothing to worry about.
     
    Jammy88 likes this.
  6. Jammy88

    Jammy88 Senior Member

    Messages:
    137
    Likes:
    126
    Italy
    Many thanks for your kind replies. It's interesting to see that infections can lead to increased moles growth. Hopefully I / we'll be able to manage this symptoms with annual check-ups.

    I have the feeling that I'm infected with some sort of retrovirus, despite my very low-risk life. My 'story' is very weird, I'm glad I found this forum 'cause it makes me feel less lonely.

    Blessings.
     
    WoolPippi and AndyPandy like this.
  7. taniaaust1

    taniaaust1 Senior Member

    Messages:
    11,904
    Likes:
    12,728
    Sth Australia
    Look up "moles mastocytosis". ... (thou I think usually masto ones are brown).
     
    Last edited: Feb 16, 2015
    Jammy88 and AkeBono like this.
  8. Hip

    Hip Senior Member

    Messages:
    9,367
    Likes:
    14,725
    Which particular symptoms do you have that look like HIV, @Jammy88?
     
    Jammy88 likes this.
  9. Jammy88

    Jammy88 Senior Member

    Messages:
    137
    Likes:
    126
    Italy

    My GP was very shocked when she saw the pictures of my skin rashes. Then I had a lot of neurological symptoms, etc. To make a long story short, she asked me 3 times if I had tested for HIV (I did, up to 100 days).

    You can find my entire story here: http://forums.phoenixrising.me/index.php?threads/guess-im-part-of-the-club.33075/

    In the beginning, I was actually sure I had HIV. It all started after an accidental contact with a person's blood (in a very uncommon and unexpected way, but that's what happened). This person had told me he was having many neurological symptoms, such as dizziness. I got all of the symptoms myself in the following months. So basically I tested for every known 'relevant' infectious disease, but got negative results for everything.

    Symptoms seems to be very similar to Htlv (HAM/TSP), or to Sjogren's Syndrome. However I stopped looking for a diagnosis - at the moment.
    Supplements and vitamins were miraculous, since I was totally bedridden 4 months ago. Even though I'm much less active than I used to be , I'm hoping to get back to work in 2-3 months. Of course I know that I will need to take care of myself more than ever, like many people in here.
    But apparently Drs. aren't able to find a proper cause underlying my symptoms and just labeled me as 'suspected infectious CFS' - which is not a real diagnosis and we all know it.

    Thanks for asking, @Hip.

    Best,
    J
     
  10. Hip

    Hip Senior Member

    Messages:
    9,367
    Likes:
    14,725
    OK, from that other thread you say:

    Does your skin rash look anything like the rash shown on this page? That page shows the rash that can be produced by the Chinese "HIV-like" virus (although in spite of its name, this Chinese virus is not related to HIV).

    If you do have the Chinese "HIV-like" virus, the good news is that after a year or two, most of the symptoms get much better, including the neurological symptoms. The Chinese virus produces severe anxiety and severe anhedonia in some people who catch it; anhedonia is a type of depression where you feel nothing in life gives much pleasure or reward.


    I myself had a very bad experience after catching a virus: the virus I caught (most likely an enterovirus) rapidly induced severe anxiety, severe anhedonia and emotional flatness symptoms, and lead to me getting ME/CFS. The virus also caused physical symptoms like a chronic sore throat, weak legs, skin changes, etc. My account of the nasty symptoms my virus produced is found on my website here.


    By the way, I don't think you would have been exposed to your friend's blood by sharing a hookah pen. Certainly though you were likely exposed to your friend's saliva, and nearly all of the infectious pathogens linked to triggering ME/CFS are spread by saliva and the respiratory (oral) route. The fact that your virus also spread to your family by normal social contact indicates is a respiratory virus spread by saliva, rather than a virus spread by blood.

    My own respiratory virus would spread to others just when I shared a meal with someone on the same table: when you talk in conversation, sometimes tiny specks of saliva can eject from your mouth and land on the other person's food, on their plate, and in this way transmit the infection.

    In particular, enteroviruses (like coxsackievirus B and echovirus) are spread by saliva and normal social contact, and these viruses can cause very nasty symptoms in some people. You may be aware of this enterovirus 68 infection currently going around in the USA, which is occasionally causing paralysis in children.

    Though the response to an enterovirus infection can vary greatly from one person to the next: one person can get severe symptoms, but the next person may only get very minor symptoms. Actually this applies to many viruses.


    Would you say you are experiencing any anxiety symptoms (excessive worry, stress and mental tension)? You say you were hit with neurological symptom. As mentioned, my virus caused me to get severe anxiety (generalized anxiety disorder), which was very unpleasant. Eventually though, the supplements I detail on this thread fixed the anxiety symptoms. If you are suffering with anxiety, these supplements may help you too.
     
    Jammy88 likes this.
  11. Jammy88

    Jammy88 Senior Member

    Messages:
    137
    Likes:
    126
    Italy
  12. Jammy88

    Jammy88 Senior Member

    Messages:
    137
    Likes:
    126
    Italy
    I forgot to say that I have tested negative for coxsackie (I can't remember if A, or B) in April 2014. But it might be worth another try, who knows.

    Also, yes, this virus 'caught' my head and caused to me severe depression, anxiety, suicidal thoughts . :-\
     
  13. AkeBono

    AkeBono

    Messages:
    77
    Likes:
    24
    Have you been tested for the "usual" viruses like EBV and CMV...?others?
    An infectionist should be able to help if its infection although I must confess mines were discovered by other practitioners...
    Maybe its not a virus anyway
     
  14. Jammy88

    Jammy88 Senior Member

    Messages:
    137
    Likes:
    126
    Italy
    Yes, EBV and CMV were negative (I had EBV mono twice in the past, however this is totally different :( and test was confirmed negative, I tested about 45 days after exposure, which is pretty reliable for those viruses)
     
  15. Hip

    Hip Senior Member

    Messages:
    9,367
    Likes:
    14,725
    Chronic coxsackievirus infections will always show as negative, because nearly all lab tests don't have the sensitivity to detect coxsackieviruses once they enter the chronic phase of infection.

    In the acute phase of a coxsackievirus infection (first 10 days) any lab can detect this virus, as I understand it; but once the infection enters the chronic phase, you need more specialist lab testing to detect it. Dr John Chia, who is the world's leading expert on enterovirus-linked ME/CFS, says that only ARUP Lab in Utah, USA can detect chronic coxsackievirus B or chronic echovirus infections in the blood.

    Unfortunately the ARUP Lab tests for coxsackievirus B and echovirus are quite expensive. And even if they are positive, it does not conclusively prove that the virus you caught is an enterovirus. It just proves that at some point in the past, you caught one of these enteroviruses. Though high titers in the ARUP Lab tests are suggestive that these enteroviruses might be the cause of your fatigue symptoms. More info: Enterovirus Foundation

    By the way, coxsackievirus A does not form chronic infections, as far as I am aware; it is only the coxsackievirus B and echovirus that form these chronic infections.
     
    Last edited: Feb 16, 2015
    Jammy88 likes this.
  16. Jammy88

    Jammy88 Senior Member

    Messages:
    137
    Likes:
    126
    Italy
    Thank you @Hip . I will try figuring out what this 'thing' is. So far, Drs. have been really unable to help. Best
     
  17. Jammy88

    Jammy88 Senior Member

    Messages:
    137
    Likes:
    126
    Italy
    Hi @taniaaust1, this is very scary but it might be a possibility. My skin was so itchy last night and some new moles appeared… God, I will get leukemia and die, I know that… :(
     
  18. Jammy88

    Jammy88 Senior Member

    Messages:
    137
    Likes:
    126
    Italy
    Thank you Dr. @Butydoc ,

    Well, my father has a lot of moles, and of course I guess I'm predisposed to get many, too. I googled the condition you mentioned, and it could match my case. My GP was concerned about possible melanoma. The dermatologist saw several atypical nevi, and I believe I have good chances of getting melanoma in the future.
    This was all triggered by my disease, this 'unknown' infection nobody is able to diagnose. My biggest concern is Htlv, although no Dr. would believe me and would just laugh at my hypothesis.
    I have no idea what to do to get a proper diagnosis anymore, there's just a lot of issues that have come up all of a sudden. I know it's all connected, but I don't know how to demonstrate it.

    I will try looking for other enzymes or inflammation markers, and get a 23andme done, too. I guess this could help.
    I'm even tired of asking for answers, when there's none.

    Best ,

    J
     
  19. Jammy88

    Jammy88 Senior Member

    Messages:
    137
    Likes:
    126
    Italy
    ok, so just wanted to give you guys a quick update. I went to my GP today and we discussed the possibility of this being 'mastocytosis'. Will get tested for that, although tests are not always reliable.

    It looks like my condition will be treated with interferon / corticosteroids, even thou i'd like to try antivirals / anti-retrovirals. We'll see…

    have a nice weekend.

    Best,
    J
     
  20. abdu88

    abdu88

    Messages:
    1
    Likes:
    0


    Hi jammy

    i have read your condition in all forums and my condition is like same thing for last one month and i got all symptoms within a month and yesterday i got some moles throughtout the body but am still fatigue cannot able to go for work or get out from bed. i have tested for hiv and all test it is negative

    can you please tell me what you had it to reduce the symptoms or just to do the daily activities

    Regards

    Ab
     

See more popular forum discussions.

Share This Page