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Name preference? CFS, ME-itis (2 versions), ME-opathy, SEID, or Ramsay

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Sean, Feb 16, 2015.

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Name preference? CFS, CFIDS, ME-itis, ME-opathy, SEID, or Ramsay

  1. CFS (Chronic Fatigue Syndrome)

    0 vote(s)
    0.0%
  2. CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome)

    0 vote(s)
    0.0%
  3. ME-itis (Myalgic Encephalomyelitis)

    18 vote(s)
    25.0%
  4. ME-opathy (Myalgic Encephalopathy)

    4 vote(s)
    5.6%
  5. SEID (Systemic Exertion Intolerance Disease)

    18 vote(s)
    25.0%
  6. Ramsay's Disease (or Ramsay Disease)

    26 vote(s)
    36.1%
  7. Other – eponymous (Please post any suggestions in the thread.)

    1 vote(s)
    1.4%
  8. Other – non-eponymous (Please post any suggestions in the thread.)

    2 vote(s)
    2.8%
  9. Don't know / No strong preference

    3 vote(s)
    4.2%
  10. ME-itis 2 (Myalgic Encephalitis)

    0 vote(s)
    0.0%
  1. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    I started a poll on myalgia today after reading a post by @nandixon pointing out that some of us don't have myalgia.

    The results may affect your voting decision here.
     
    Sean likes this.
  2. Dolphin

    Dolphin Senior Member

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    oceiv, Simon and MeSci like this.
  3. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    oceiv likes this.
  4. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    There is an old thread about RBC shape in ME/CFS here. Looks really interesting.
     
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  5. Dolphin

    Dolphin Senior Member

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  6. dean

    dean

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    Idiopathic is a good old fashioned simple term understood as signifying a real disease by all clinicians, researchers and scientists. It should be included as part of the name for our thing.
     
  7. wastwater

    wastwater Senior Member

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    Reject every name including ME
     
    merylg likes this.
  8. ukxmrv

    ukxmrv Senior Member

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    London
    I'm not so sure about that? When CFS was invented they used Ideopathic fatigue to describe other fatigue of an unknown origin that was not CFS. There was no understanding or explanation that this was a separate disease or groups of diseases as far as I could see. They were describing a symptom with an unknown origin in general.
     
    Last edited: Feb 27, 2015
    Valentijn, MeSci and Wildcat like this.
  9. dean

    dean

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    You are right. For some unclear reason they differentiated CFS from idiopathic CF by the difference of having 3 instead of 4 out of 8 symptoms. One symptom less and you had simply chronic fatigue instead of chronic fatigue syndrome. I don't understand why they did this. It has not been of use and the distinction has been virtually ignored. All of ME/CFS etc is idiopathic.
     
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  10. Dolphin

    Dolphin Senior Member

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  11. Tom Kindlon

    Tom Kindlon Senior Member

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  12. Sidereal

    Sidereal Senior Member

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    Well, I'll be damned. Even Byron Hyde of all people agreed in his 1992 textbook on ME/CFS that ME-itis is an incorrect name. Page 4:

     
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  13. Dolphin

    Dolphin Senior Member

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