Julie Rehmeyer's 'Through the Shadowlands'
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Survey on the Name and Criteria for ME or CFS

Discussion in 'General ME/CFS News' started by mango, Mar 1, 2016.

  1. mango

    mango Senior Member

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    via prof Leonard Jason on Facebook:
     
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  2. msf

    msf Senior Member

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    I suggest WGAF Syndrome, a name the doctors and health care services can get behind.
     
    Last edited: Mar 1, 2016
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  3. Bob

    Bob

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  4. mango

    mango Senior Member

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    this new one has a slightly different focus. name preferences are there, again. there are questions about different sets of clinical and research criteria (Fukuda, CCC, ME-ICC, SEID, London criteria etc). no questions about educational concerns.
     
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  5. Bob

    Bob

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    I've completed it. It's a very short survey. Only takes a couple of minutes.

    Make sure you click through to what they call the "Ramsay criteria" if you need to refresh your memory about them: They're very short and only take a minute to read.

    Ramsay is not listed as an author on the "Ramsay criteria", and they're officially called the "London criteria". Does anyone have any insight into why they're referred to as the Ramsay criteria? Is it a spurious weblink?

    Edit.
    This answers my question...
     
    Last edited: Mar 1, 2016
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  6. JohnCB

    JohnCB MEow

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    If I am recalling the right document, the earlier document was a re-analysis of data generated prior to the IOM report by a different body. Here they are generating their own data with their own choice of questions. It doesn't take long to complete this survey unless like me you get distracted and start reading other links you find when referencing the different ME/CFS criteria documents, or if like me again, you write a long diatribe about the word fatigue in the comment section.
     
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  7. Scarecrow

    Scarecrow Annie Gsampel

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    Is that similar to CGAF and DGAF syndromes or am I on the wrong track?
     
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  8. JohnCB

    JohnCB MEow

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    WTF?
     
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  9. Scarecrow

    Scarecrow Annie Gsampel

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    The survey referred to the 'Ramsay based London criteria'.
     
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  10. mango

    mango Senior Member

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  11. Sean

    Sean Senior Member

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    Done. :thumbsup:
     
  12. picante

    picante Senior Member

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    The survey took me about 30 minutes, because I was clicking on the links, and then wrote a comment.
     
  13. medfeb

    medfeb Senior Member

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  14. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    Done.

    5 minutes, tops.
     
  15. free at last

    free at last Senior Member

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    I have just done it, but it was hard to answer the questions
     
  16. slysaint

    slysaint Senior Member

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    Didn't know where to post this so picked this thread....
    I was trying to find out where exactly CFS and ME were on the WHO ICD. So I looked at this:
    http://apps.who.int/classifications/icd10/browse/2014/en#/G93.3
    and ME is classified under PVF and if you search on CFS the name doesn't come up in the lists but puts you back on ME?
    Sorry, am I missing something?
     
  17. Horizon

    Horizon Senior Member

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    Survey no longer active.
     
  18. halcyon

    halcyon Senior Member

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    In the WHO ICD, CFS is not in the tabular list of diseases. The main entry is for postviral fatigue syndrome and ME is classified underneath this. CFS is only in the index and points to G93.3, PVFS/ME. This isn't obvious from the online interface, I know.
     
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