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Mast Cells and TINNITUS

Discussion in 'Hypersensitivity and Intolerance' started by acrosstheveil, Jul 3, 2014.

  1. acrosstheveil

    acrosstheveil Senior Member

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    What causes this disorder and how can we fix it? I am getting severe tinnitus triggered by foods I have eaten all my life. More and more things trigger neural inflammation every day. My mouth and hands become numb and I feel highly anxious. I am unable to sleep, highly irritable, and feel crazy! I have been gobbling antihistamines by the truckload with no help. High dose b12 helps for like 5 minutes and then the ringing is back! What is this?!?
    end likes this.
  2. ahmo

    ahmo Senior Member

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    @acrosstheveil I mentioned adrenals on your other active thread. Mast cells and tinnitus are both related to adrenal stress. As far as I've found the best strategy for easing adrenal stress is coffee enemas. This clears the liver, which also alleviates stress on the adrenals. My tinnitus has now become a barometer of my adrenal stress. When there's hissing, and my irritability returns, I know it's time for coffee enemas to clear the system. An uncongested liver will also handle the histamine load better.

    Also, I've just discovered that my adrenals/tinnitus are v reactive to other foods I'd never known were problematic See the linked site for autoimmune stimulating foods.:(

    I've posted my CE experience here:
    http://forums.phoenixrising.me/index.php?entries/my-detox-story-coffee-enemas.1616/
    http://aiplifestyle.com/what-is-autoimmune-protocol-diet/
    Last edited: Jul 3, 2014
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  3. acrosstheveil

    acrosstheveil Senior Member

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    ive been on adrenal glandulars and pantethine with little improvement for the adrenals. I have never done coffee enemas and will consider it. I have never done an enema before. :nervous: any other good things for the adrenals?
  4. ahmo

    ahmo Senior Member

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    @acrosstheveil I used adrenal glandulars for 2 years, starting from a point when I was at my worst. They were a core part of my life support system, along w/ hypothalamus, pituitary. When I got to the end of a massive detox in May, I no longer needed the glandulars.

    I know of no better way to support adrenals than by treating my liver so that it’s not congested, and can thus relieve the toxic burden on adrenals. My acupuncturist used to always treat my spleen, saying my liver was too sensitive. Similarly here, I treat the liver to affect my adrenals. I also use herb chanca piedra to support liver, kidneys.

    I 'm very beholden to Dietrich Klinghardt and his detox protocol. I initially chose CEs from the starting point of constipation and build-up of bacteria. Over the months I used them, I appreciated more and more the power of them for liver cleansing. Even if you chose something like EDTA or DMPS for metal detox, this is a way to get the by-products out of the body. Eventually I began to also look forward to this time when I could listen to lectures, read, have a bit of respite from the outside world:whistle: You'll find links to CE info in the earlier link I gave to my blog post.

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  5. end

    end Senior Member

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    @acrosstheveil @ahmo

    Have you guys run into any information regarding Tinnitus after a H.Pylori protocol?

    It is driving a friend of mine crazy(he also has CFS/ME)
    Last edited: Jul 4, 2014
    Sammy likes this.
  6. AbbyDear

    AbbyDear

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    my tinnitus gets worse due to certain foods/supplements/meds as well, the same things that make other symptoms worse (including pain, sleep, and the wired mind/feeling...). I have found nothing that helps me with this increase in tinnitus, cept time to decay/avoidance of triggers.
  7. ahmo

    ahmo Senior Member

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    I haven't gone deeply into tinnitus. When I learned within the last year that there was an adrenal link, it solved another of the mysteries of my health/life. I had a major detox elimination in May. The build-up and release during and after were quite clearly directly involving my adrenals. After this clearing my trinity of irritability, agitation, and low threshold for frustration had transformed. I'd sought to eliminate my reactivity and these traits for most of my adult life, through all manner of therapies. At the same time my dry skin and mast cell symptoms resolved, and I no longer cringed in the cool air after showers. All these indicated a major shift in my adrenal health. And, I woke up for the first time since ME/CFS w/ quiet in my ears.

    Over the weeks since then I've discovered that a return of mild hisss occurs when eating gluten cross-reactive foods, and autoimmune stimulating foods, and when I've tried increasing my thyroid medication. My adrenals clearly cannot handle additional thyroid. And clearing them by decongesting my liver has disappeared the hiss. I'm hoping low dose naltrexone helps me w/ the autoimmune antibodies, takes a load off adrenals/liver. Possibly the H Pylori protocol has dumped stuff into the liver that needs clearing.

    I just put 'causes of tinnitus' into search engine, and there are many. The wikipedia is as good a list as any. And when I searched 'adrenals + tinnitus' I found
    Interesting, seems to be 2 different adrenal experts, Lawrence Wilson, who I quoted in my earlier post, and James L Wilson, quoted here.

    https://en.wikipedia.org/wiki/Tinnitus
    http://blog.adrenalfatigue.org/ James L Wilson,
    Last edited: Jul 4, 2014
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  8. acrosstheveil

    acrosstheveil Senior Member

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    i may try the coffee enemas. I am a bit hesitant because I believe my liver is in the best shape it has been in years. I take upwards of 12 tbsp chlorella/spirulina a day and have massively detoxed because of it. THat coupled with high dose iodine has really cleared me out. Who knows though. Maybe I need the coffee enemas. Is there a specific coffee I should be using to do it? special way to brew it? like I said, never done an enema before so I don't want to mess it up.... :wide-eyed:
  9. ahmo

    ahmo Senior Member

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    Last edited: Jul 4, 2014
  10. acrosstheveil

    acrosstheveil Senior Member

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    don't think i have hashimotos. although, with all the autoimmune stuff that's been going on lately, it wouldn't surprise me.
  11. ahmo

    ahmo Senior Member

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  12. acrosstheveil

    acrosstheveil Senior Member

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    my diet is severely limited. it seems like all i eat is grass fed chicken, coconut oil, and a few veggies.... :depressed::meh:
  13. ahmo

    ahmo Senior Member

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    mine also:aghhh::hug:
  14. end

    end Senior Member

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    @ahmo

    I think your onto something here because(only recently)he has been very reactive to high dose sodium chloride/salt...

    "...Porth offers a possible physiological explanation for a connection between decreased adrenal function and ear ringing, or subjective tinnitus. Mineralocortocoids, steroid hormones produced in the adrenal glands, maintain a proper balance of sodium, potassium and water in the body; and one of the causes of subjective tinnitus is improper balance of ionic minerals."

    Does this mean it puts the adrenals under even more stress? --> "Possibly the H Pylori protocol has dumped stuff into the liver that needs clearing."
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  15. ahmo

    ahmo Senior Member

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    @end
    Certainly possible salt is stressing things. When my adrenals were really overloaded I had to go no-salt.

    I'm also experiencing increased tinnitus today. Yesterday I did coffee enema, no sound at all when I went to bed. And this AM, louder than the hiss I've been getting over these last weeks. :( The only thing I can think of is the corn starch in my thyroid rx, which I can't get rid of for at least 10 days, when I can start compounded T3. It's my last allergenic source. Maybe I've added too much salt back into diet? Maybe it's just low K+, as mentioned in comment below. I've been needing less recently, but I'll certainly be paying attention to whether this shifts w/ my next K+ dose. The only thing I know is that I'm not getting any pain in my kidney/adrenal area today...:confused:


    I've just been doing some looking around at other threads.
    And @Victronix just posted on the same thread
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  16. end

    end Senior Member

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    @ahmo

    So I guess anything(allergies, deficiencies)that stress the adrenals can cause/increase tinnitus?

    I think sodium may also further complicate things because like you posted above - "and one of the causes of subjective tinnitus is improper balance of ionic minerals."

    You can get K+ on script in Oz - Slow K or Span K. Or you could try high K+ foods and see if that helps?

    Thanks for the heads up. I also read about b12, zinc & possibly Vitamin A & D deficiency causing tinnitus. But never anything regarding K+ !
    Sammy likes this.
  17. ahmo

    ahmo Senior Member

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    K+:thumbsup::thumbsup:

    I felt quite off yesterday. Not only the ear buzzing, but irritable, mast cell sites flared. Took extra K+ in PM and woke up w/o mast cell symptoms, and buzz in ears reduced to fine hisss. I'm also rather amazed to find how :grumpy:the increased sound in my ears made me feel. This was nothing compared to what I'd endured for years, but an increase on my new normal. Tinnitus sux:thumbdown:

    That's been my experience.
  18. acrosstheveil

    acrosstheveil Senior Member

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    i've been having a hell of time getting my mast cell reactions under control. Been taking allegra, zantac, benadryl, hydroxyzine, and singulair with little help. It at leasts stops the chest pains but not the tinnitus. I should be getting my first dosage of cromolyn sodium on monday (pharmacy had to special order) so I'm optimistic about that.
  19. Hanna

    Hanna Senior Member

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    There seems to be some controversy between the "both Wilsons"
    According to Dr Lawrence Wilson, MD : light roated coffee is better to be avoided. (see below, quoted from his internet site - coffee enema page)

    "2. A medium or dark roast. I suggest a medium or dark roast coffee for most people. Research in Molecular Nutrition & Food Research found that dark roast coffee restored blood levels of the antioxidants vitamin E and glutathione more effectively than light roast coffee. The dark roast also led to a significant body weight reduction in pre-obese volunteers, whereas the light roast did not."

    Separate research also showed that dark roast coffee produces more of a chemical called N-methylpyridinium. This chemical is produced during the roasting process, and the darker the roast, the more N-methylpyridinium it contains.

    Caffeine levels vary depending on the degree of roasting of the coffee. Darker roasts often contain less caffeine than lighter roasts.

    Some authorities suggest a light roast coffee, or golden coffee such as the “enema coffee” sold by S.A. Wilson in Canada. It is much more yin, which is not desirable. Light roast coffee also contains a toxin that I do not believe should be there. Roasting the coffee more gets rid of this yin toxin. The light roasted coffee may be somewhat easier to use for some people, but it is not best, in my view."

    Once again, difficult to know what is better for us... Perhaps, just try the both and draw your own conclusion. The golden one is incredibly expensive for those who live outside Canada/US.
  20. ahmo

    ahmo Senior Member

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    I started w/ dark roast organic; it was what I'd been drinking. Even when I reduced the amount of coffee I used, I still had difficulty sleeping, no matter how early in day I started. Then switched to a light roast. Better. Then I went w/ saWilson's special enema light blend. I was highly sceptical, but gave it a try when I found it no more expensive than any commercial organic coffee, even w/ postage to Australia. Best by far.
    Hanna likes this.

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