Discussion in 'General ME/CFS News' started by she, Jan 9, 2014.
there are few more interviews on Youtube
with KDM, dr. Frans Visser
I havn't found the thread here
I'd already watched it. There is another thread with this video somewhere but it's a bit hidden away.
It's an eye-opening and emotive interview (bewildering, distressing and sad).
I recommend that people watch it especially if they are interested in child protection issues in the UK.
It describes child protection issues at the hands of the medical services in the UK.
Particularly worrying, I think is the way parents cannot refuse inappropriate cognitive-behavioural treatments for their children, or they can be considered to be obstructing treatment and then accused of neglect/abuse etc. This really is an outrageous situation, considering that the cognitive-behavioural treatments are harmful to many patients, and clinically useless at improving any objectively measured outcomes.
Following Jane Colby on the UK's Tymes Trust on Twitter, I have become aware that there are many families with children with ME in the UK who find themselves in very difficult situations with the medical profession, social services and education services. It usually seems to be a case of a total lack of understand about of the nature of the illness and the needs of the patients (on the part of the professionals, not the parents) coupled with a lack of flexibility on the part of the professionals. Along with the misinformed and inaccurate prevailing view that ME is a functional illness that will be cured if (inappropriate cognitive-behavioural) treatment is accepted. Parents are often expected accept the inappropriate instructions from the medical profession who treat ME as a functional disorder, despite ME being officially classified as a neurological disorder in the UK, and despite cognitive-behavioural interventions being proven to be of no benefit at improving the actual illness when objectively measured.
tried to find this other thread/s with other interviews with KDM, prof. Visser etc.
But did not.
Do u know if they are posted here as well ?
The following thread is the only thread that I'm aware of. It doesn't include any other videos yet:
Cardiologist Frans Visser is a member of our ME guideline working group. You can find a longer presentation on our website, see http://www.mevereniging.nl/landelijke-me-informatiedag-2013 (different patient organization).
His main interest regarding ME is in bloodflow abnormalities.
You can also try a Google Site Search
Separate names with a comma.