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dr. Fluge and Mella answers to criticism regarding chemo study on PWME

Discussion in 'General ME/CFS News' started by deleder2k, Mar 20, 2015.

  1. deleder2k

    deleder2k Senior Member

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    Norwegian Daily Medicine 2015.03.20

    dr. Øystein Fluge and dr. Olav Mella comments on Reimer's concern regarding the upcoming cylophosphamide study




    Original article in Norwegian: http://www.dagensmedisin.no/debatt/-kan-mecfse-respondere-pa-immunmodulerende-behandling/
    Translated by Google Translate and myself
     
    Last edited: Mar 20, 2015
    Marky90, justy, Debbie23 and 39 others like this.
  2. adreno

    adreno PR activist

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    Can you please post a link when quoting, thanks.
     
    Sushi likes this.
  3. deleder2k

    deleder2k Senior Member

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    Done :)
     
    Dr Speedy, Esther12, Simon and 3 others like this.
  4. Gijs

    Gijs Senior Member

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    Intervention with CBT/GET have adverse effects (for at least a subgroup) why do doctors neglect this ? Isn't this wrong and unethical either?
     
    catly, Kati, Iquitos and 6 others like this.
  5. Sidereal

    Sidereal Senior Member

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    Doing nothing and leaving people rotting for decades in their beds causes a lot of adverse effects too.
     
    Marky90, justy, Debbie23 and 23 others like this.
  6. medfeb

    medfeb Senior Member

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    Thank you for posting this, Deleder2K.

    Very good - and politically useful - response, especially the following
     
    justy, catly, Gemini and 11 others like this.
  7. DanME

    DanME Senior Member

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    Very good article! Thank you for posting!

    I am glad to see Fluge and Mella finally being engaged in the discussion. Hopefully this shuts Reiner up. We ll see.

    The Norwegian team at Haukeland definitely gets, how devastating ME can be and how seriously we are need of finding a proper treatment!
     
    justy, Debbie23, catly and 9 others like this.
  8. DanME

    DanME Senior Member

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    It is! First rule: do no harm! And GET is extremely harmful for us. Pushing it, because you cannot let go of your psychosomatic theories, is unethical. With no doubt!
     
    deleder2k, zzz, Kati and 8 others like this.
  9. msf

    msf Senior Member

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    Wow, very interesting, especially (for me) the quote about many ME cases start with an infection, and how that fits the picture of an autoimmune disease. Also the reference to cancers found in patients with chronic infections later in the article. This seems to suggest that they are approaching this from a slightly different angle to someone like Prof. Edwards, unless I am misrepresenting his position.
     
  10. Dolphin

    Dolphin Senior Member

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    Yes, I'm often reading how exercise is one of the best medicines out there. And so not doing it (from not being able to do it), causes all sorts of long-term risks.
     
  11. Sasha

    Sasha Fine, thank you

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    UK
    Very dignified answer. :thumbsup:
     
    justy, beaker, deleder2k and 3 others like this.
  12. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    I am very happy to see Dr.s Fluge and Mella's humane and rational response to Reimer and peers of his ilk. They are stuck in circular arguments which perpetuate the neglect, suffering, and outright torture of millions of very ill people. Fluge and Mella's compassion in getting so involved with a disease outside their area of expertise is striking. Thank you for translating and posting this for us @deleder2k I hope it gets widely republished.
     
    justy, ukxmrv, beaker and 8 others like this.
  13. Helen

    Helen Senior Member

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    Last edited: Mar 31, 2015
  14. deleder2k

    deleder2k Senior Member

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    I have read it.. It is just a summary of what he wrote in his first article... Nothing new really! When you feel deep inside that ME is a psychiatric condition I understand that he thinks the way he does...
     
  15. Helen

    Helen Senior Member

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    OK. Thanks @deleder2k . Just wanted to alert you in Norway on this as it might be important for the ongoing discussions. Fluge and Mella would probably get the last word if they would like to reply.
     

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