1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Nitric oxide and its possible implication in ME/CFS (Part 2 of 2)
Andrew Gladman explores the current and historic hypotheses relating to nitric oxide problems in ME/CFS. This second article in a 2-Part series puts nitric oxide under the microscope and explores what it is, what it does and why it is so frequently discussed in the world of ME/CFS....
Discuss the article on the Forums.

Dr. Derek Enlander: New trial using methylation supplements

Discussion in 'Active Clinical Studies' started by Nielk, Jul 24, 2013.

  1. Nielk

    Nielk

    Messages:
    5,267
    Likes:
    5,267
    Queens, NY
    Dr. Enlander, of the New York CFS Association, posted this on Facebook today:

    Clinical Trials
     
    beaker, ukxmrv, alex3619 and 3 others like this.
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    7,052
    Likes:
    6,017
    Albuquerque
    Nielk

    Interesting! Do you know if you have to come into his office for this? I'd guess so....

    Also, it would be very interesting to know what the supplements and injections are, dosing etc. If you get any more information, please post!

    Thanks,
    Sushi
     
  3. taniaaust1

    taniaaust1 Senior Member

    Messages:
    8,061
    Likes:
    5,041
    Sth Australia
    im wondering how this will go as patients seem to have different methylation issues if ive understood the stuff ive read in the past and peoples experiences here, it often seems to have to be tailored to the individual (I remember how Fredds and Richs programs were different and some did certainly better on one of them then the other).

    I certainly do think methylation protocols help many of us if we work out the best for us.
     
  4. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

    Messages:
    2,632
    Likes:
    1,992
    Midwest, USA
    Did the people is Rich and dr. Nathan's study have to all take the same thing? It did have some success. To be most successful, I think most people have to customize the protocol to their own needs. I doubt that would be acceptable is a study.
     
  5. Firestormm

    Firestormm Guest

    Messages:
    5,824
    Likes:
    5,976
    Cornwall England
    How can you post a study without revealing the treatment? Seems odd. Anyone know if this is an officially registered clinical trial? I can't remember what the website is where you can find out :oops:
     
  6. JohnnyD

    JohnnyD Senior Member

    Messages:
    144
    Likes:
    210
  7. Firestormm

    Firestormm Guest

    Messages:
    5,824
    Likes:
    5,976
    Cornwall England
    Thanks Johnny :)

    Hmm... Look's like Enlander was misquoted in that article. Wonder why he's now looking at only Immunoprop when on his website he seems to use a cocktail of supplements? Well I guess he is putting the company's claims to the test which can only be a good thing in my book. This will only be an observational study though won't it (Karnovsky) not a look into what exactly this 'drug' might be doing and why. And double-blinded but no controls with 100 patients assessed using Fukuda and CCC. Look forward to hearing the results.
     
  8. Nielk

    Nielk

    Messages:
    5,267
    Likes:
    5,267
    Queens, NY
    The notice says weekly injections and oral tablets.

    I would assume that the injection contains his usual :
    Hepapressin
    Glutathione
    Magnesium sulphate methyl cyanocobalomin
    Folic acid
    Calphosan
    trace elements

    This is from his "CFS Handbook".

    The tablets are probably Immunoprop and Immunoplus.

    I would imagine that it is impossible to customize these in a trial.
     
  9. Firestormm

    Firestormm Guest

    Messages:
    5,824
    Likes:
    5,976
    Cornwall England
    Thanks Nielk. Strange the full cocktail isn't mentioned in the clinical trail info. Maybe you don't have to. I haven't really looked to compare. Anyway, look forward to the results. I would encourage anyone who has taken this particular supplement or the cocktail to enroll and anyone else who can - these kind of things will help in the long run.
     
  10. Nielk

    Nielk

    Messages:
    5,267
    Likes:
    5,267
    Queens, NY
    I have taken this protocol in the past and stopped. Just last week I went back on it. In the past it did not seem to do mu h for me but when I stopped I felt worse. I we t back on it because my lab results came back showing a decline.

    The problem though with taking part in the trial is that one doesn't know if they Are getting the real thing. Then again it is free.

    It will be interesting to see the results.
     
  11. Eucalypta

    Eucalypta Guest

    Messages:
    55
    Likes:
    31
    lala-land
    Dr.Enlander isn't a man of many words, if you want to know more contact him. He's always happy to answer my questions.

    I've been on this protocol since January. It is not a protocol that will give you results in a few weeks. I have been injecting every day and faithfully take the supplements and am now seeing results. My NK went up from 4 to 90. My T reverse went down from 45 to 27 without the use of thyroid medications. It takes persistence to stick with it even though you do not see direct results. Plus not all patients get results. The blogs and forums I trail show many who stopped because it 'did nothing'. Whether this is because they stopped too early or just are not a good responder I don't know.

    Btw, I'm not a patient of dr Enlander.
     

See more popular forum discussions.

Share This Page