Discussion in 'Active Clinical Studies' started by Nielk, Jul 24, 2013.
Dr. Enlander, of the New York CFS Association, posted this on Facebook today:
Interesting! Do you know if you have to come into his office for this? I'd guess so....
Also, it would be very interesting to know what the supplements and injections are, dosing etc. If you get any more information, please post!
im wondering how this will go as patients seem to have different methylation issues if ive understood the stuff ive read in the past and peoples experiences here, it often seems to have to be tailored to the individual (I remember how Fredds and Richs programs were different and some did certainly better on one of them then the other).
I certainly do think methylation protocols help many of us if we work out the best for us.
Did the people is Rich and dr. Nathan's study have to all take the same thing? It did have some success. To be most successful, I think most people have to customize the protocol to their own needs. I doubt that would be acceptable is a study.
How can you post a study without revealing the treatment? Seems odd. Anyone know if this is an officially registered clinical trial? I can't remember what the website is where you can find out
Hmm... Look's like Enlander was misquoted in that article. Wonder why he's now looking at only Immunoprop when on his website he seems to use a cocktail of supplements? Well I guess he is putting the company's claims to the test which can only be a good thing in my book. This will only be an observational study though won't it (Karnovsky) not a look into what exactly this 'drug' might be doing and why. And double-blinded but no controls with 100 patients assessed using Fukuda and CCC. Look forward to hearing the results.
The notice says weekly injections and oral tablets.
I would assume that the injection contains his usual :
Magnesium sulphate methyl cyanocobalomin
This is from his "CFS Handbook".
The tablets are probably Immunoprop and Immunoplus.
I would imagine that it is impossible to customize these in a trial.
Thanks Nielk. Strange the full cocktail isn't mentioned in the clinical trail info. Maybe you don't have to. I haven't really looked to compare. Anyway, look forward to the results. I would encourage anyone who has taken this particular supplement or the cocktail to enroll and anyone else who can - these kind of things will help in the long run.
I have taken this protocol in the past and stopped. Just last week I went back on it. In the past it did not seem to do mu h for me but when I stopped I felt worse. I we t back on it because my lab results came back showing a decline.
The problem though with taking part in the trial is that one doesn't know if they Are getting the real thing. Then again it is free.
It will be interesting to see the results.
Dr.Enlander isn't a man of many words, if you want to know more contact him. He's always happy to answer my questions.
I've been on this protocol since January. It is not a protocol that will give you results in a few weeks. I have been injecting every day and faithfully take the supplements and am now seeing results. My NK went up from 4 to 90. My T reverse went down from 45 to 27 without the use of thyroid medications. It takes persistence to stick with it even though you do not see direct results. Plus not all patients get results. The blogs and forums I trail show many who stopped because it 'did nothing'. Whether this is because they stopped too early or just are not a good responder I don't know.
Btw, I'm not a patient of dr Enlander.
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