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"Deactivating Epstein-Barr virus" through supplements??

Discussion in 'General Treatment' started by daveu, Apr 12, 2017.

  1. daveu

    daveu

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    Hi there,

    I saw a clinical nutritionist here in the UK for my M.E. after a relapse in 2016.

    My symptoms then were moderate (80% as defined by the mesupport.co.uk website's M.E. Disability Scale https://www.mesupport.co.uk/index.php?page=m-e-disability-scale) and they have now moved to mild-to-moderate (60%).

    This clinical nutritionist had me complete two lab tests from Genova Diagnostics Europe: 'Adrenal Stress Profile' and 'Metabolic Analysis Profile (Urine)'. Following the results of those two lab tests she concluded that the glandular fever I first got in 2008 which preceded my M.E. was part of the problem and that we needed to "deactivate" the virus.

    She prescribed me the following supplements (photos of ingredients attached):
    Humic-Monolaurin Complex from Allergy Research Group
    Bio-Glycozyme Forte from Biotics Research Corporation
    B12-2000 (with Folate and B6) from Biotics Research Corporation

    I have been taking the above supplements daily now for approximately seven months. My symptoms have moved to mild-to-moderate. I can't say whether these supplements have been the key to my slow improvement or if things like rest and pacing have been more the key to my recovery. But I figure the supplements haven't hurt especially the B12 supplements.

    My question for this forum is: has anyone ever heard of "deactivating the Epstein-Barrr virus" through supplements as a key to recovery from M.E.? Is that just a turn of phrase or is that actually nonscientific?

    Thanks very much

    Allergy-research-group-humic-monolaurin-complex-food-supplement.JPG Allergy-research-group-humic-monolaurin-complex-food-supplement-ingredients.JPG Biotics-research-corporation-B12-2000-vitamin and-food-supplement.JPG Biotics-research-corporation-B12-2000-vitamin and-food-supplement-ingredients.JPG Biotics-research-corporation-bio-Glycozyme-Forte-vitamin-and-mineral-food-supplement.JPG Biotics-research-corporation-bio-Glycozyme-Forte-vitamin-and-mineral-food-supplement-ingredients.JPG
     
  2. Mary

    Mary Senior Member

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    @daveu - No, I haven't heard of "deactivating the Epstein-Barr virus" as a key to "recovery from M.E.". No one knows how to cure M.E. It's not proven that Epstein Barr causes M.E., although I believe most of us have problems with the virus. It can be a question of which came first - EBV, or malfunctioning immune system which allowed EBV to flourish.

    Also, there are several other viruses commonly associated with M.E.: Coxsackie B, HHV-6, various echoviruses, cytomegalovirus - not all of us have all of them, but many or most have some.

    Having said all this, it is a good thing to lessen one's viral load. The supplements you're taking look good; however, they also appear to be quite pricey, especially the Humic-Monolaurin product and Bio-Glycozyme. I think there are more cost-effective products which may accomplish the same thing.

    I've found andrographis to be very effective against viruses, and it's cheap. Here's one study about andrographis and EBV: https://www.ncbi.nlm.nih.gov/pubmed/18981566 It's an immune modulator, I think it also stimulated my thyroid (for which I've been taking desiccated thyroid). I've been able to cut my dose by 25%. I know olive leaf extract is supposed to be very good, but I have not found it to be very effective.

    I've taken both this brand of andrographis: https://www.amazon.com/Planetary-He...=1492008187&sr=8-2&keywords=andrographis&th=1 and this: https://www.amazon.com/Paradise-Her...8&qid=1492008187&sr=8-6&keywords=andrographis and both have been effective. And I was getting sick a LOT - actually most of the time - and since starting the andrographis get sick much less, and recover more quickly.

    The Bio-Gycozyme is probably a good multi-vitamin but it's very pricey and there are good much cheaper alternatives.
     
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  3. JES

    JES Senior Member

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    "Deactivating" is indeed a weird term and sounds to me as a nonscientific. Once you catch a herpesvirus like EBV, it will stay in your body forever, but a normal immune system keeps it in check by mounting an antibody response against it. There is no way to deactivate a herpesvirus permanently. Antivirals drugs like valaciclovir work by preventing replication of herpesviruses, so eventually the viral load will become lower. Most natural treatments work primarily by stimulating your own immune defense and thus making it more efficient at clearing the virus, although stuff like olive leaf also have at least in vitro direct antiviral effects.
     
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  4. Snowdrop

    Snowdrop Rebel without a biscuit

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    Hello @daveu

    Welcome to PR.

    Since you are new and there is so very much information here I thought I'd share a few links on what is the latest in ME research.

    http://www.pnas.org/content/113/37/E5472.full

    http://www.nature.com/news/biologic...onic-fatigue-syndrome-begin-to-emerge-1.21721

    https://meaustralia.net/2016/09/08/...in-severe-myalgic-encephalomyelitis-patients/

    Info on the flaws of the PACE trial and it's recommendations for ME/cfs
    http://www.virology.ws/mecfs/

    By now you may be aware that ME is difficult to diagnose and there is no proper medical treatment through medical institutions. Many people are raising awareness of this through media and other means to effect a better outcome for all of us.

    There is a new documentary out about these issues/ME: http://www.unrest.film/blog/2016/11...emiere-at-sundance-film-festival-january-2017

    Among the many people here on PR we have tried many things. Not everybody responds the same way. And for the most part things that work help manage symptoms as opposed to returning us to normal functioning.

    It would be good to have a look around here and weigh up what you want to try. I would suggest trying one thing at a time (otherwise how do you know what's working) and then try all of the things you think might help by adding in one at a time.
     
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  5. daveu

    daveu

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  6. daveu

    daveu

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    @JES Thanks for the reply. That's really interesting that "most natural treatments work primarily by stimulating your own immune defence", as my understanding is M.E. is partly a immune system dysfunction… Is it the best thing for me to be stimulating my own immune defence?

    Also I am not familiar with "in vitro direct anti-viral effects", what does this mean? And would in vitro direct anti-viral effects be doing anything good for my M.E.?
     
  7. daveu

    daveu

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    @Mary Thanks Mary. It is encouraging to know the supplements I am taking look good. I am currently weaning myself off humic monolaurin very slowly with my nutritionists guidance. But I will talk to her about more affordable multi vitamin options.

    I am not familiar with andrographis so thank you for recommending them. I will discuss them with my nutritionist but given I am coming off the humic monolaurin she may not see a need to be taking andrographis.
     
    Mary likes this.

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