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AHRQ Evidence Review Changes Its Conclusions

Discussion in 'Latest ME/CFS Research' started by Denise, Aug 16, 2016.

  1. Denise

    Denise Senior Member

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    "Mary Dimmock has led the way on this issue, and is co-author of this post.

    [​IMG]In response to requests by U.S. patient organizations and advocates, the U.S. Agency for Healthcare Research and Quality (AHRQ) has issued an Addendum to its 2014 ME/CFS evidence review. This Addendum downgrades the conclusions on the effectiveness of cognitive behavioral therapy (CBT) and graded exercise therapy (GET), and this has tremendous implications for medical education and treatment recommendations."

    The full post is available on Occupy M.E. (had you noticed the name change?)
     
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  2. snowathlete

    snowathlete

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    this is a good step forward, great work from those involved.
     
  3. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

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    ICO decision AND now this!
    Today is a mighty fine day :):):)

    Thanks to @jspotila and anyone else involved in making this happen. :balloons:
     
    Izola, jspotila, MEMum and 20 others like this.
  4. dancer

    dancer Senior Member

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    A gold medal day indeed!!!! (I've been watching the Olympics - hee hee!).
     
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  5. Hutan

    Hutan Senior Member

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  6. Sean

    Sean Senior Member

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    Between this and the tribunal ruling against PACE about releasing their data, it's turning into a week to remember, and for all the right reasons. Which makes a nice change.

    :):):)
     
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  7. aimossy

    aimossy Senior Member

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    :balloons: brilliant work!
     
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  8. L'engle

    L'engle moogle

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    Asking as a non-American, does the AHRQ have a lot of input into policy change? Thanks.
     
  9. halcyon

    halcyon Senior Member

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    I don't know a lot about them, but they are an operating division of the DHHS and their stated purpose is:

     
  10. Solstice

    Solstice Senior Member

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    I'm making a summary of important ME/CFS news on a couple of dutch news forums I frequent. This is gonna be in it, the decision about PACE, the work the groups around Davis and Lipkin are doing and I would like to add something about the IOM confirming this is a biomedical disease. I need some help with the latter though, is there an easy to comprehend article somewhere I can use for that?
     
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  11. mango

    mango Senior Member

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  12. Dolphin

    Dolphin Senior Member

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  13. Dolphin

    Dolphin Senior Member

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  14. Dolphin

    Dolphin Senior Member

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    As I said previously:
     
  15. Dolphin

    Dolphin Senior Member

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  16. Mary

    Mary Senior Member

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  17. Denise

    Denise Senior Member

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    Hi,
    I am glad the addendum is getting talked about in places like the SolveCFS Newsletter.
    There is a thread about the addendum underway.
     
    Mary and Kati like this.
  18. Mary

    Mary Senior Member

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    I didn't remember your original post, although I "liked" it at the time! :confused::whistle:
     
  19. medfeb

    medfeb Senior Member

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    Thanks for posting, Mary. Zaher does a really nice job of connecting dots on how this and recent PACE events will require a response from HHS agencies. They can't as he says ignore an evidence review of one of their own agencies. To date, we have not seen a official change in position so it we will need to keep up the pressure.

    Regarding the AHRQ Addendum - that addendum is only posted on the AHRQ website and its existence is noted as a short note at the end of the Evidence Review Executive Summary and also as a comment by Lily Chu on the Annals article publishing the original review. Neither of these are sufficient as the majority of readers will not see them. I have requested that the addendum conclusions be positioned at the beginning of the evidence review and also be included directly in the Annals article, not just in the comments. Waiting to hear what they say.
     
    Last edited: Sep 17, 2016
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