I saw this thread. Very interesting. Thanks for pointing it out, lansbergen.
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OK, so obviously finding another piece of the puzzle (mast cell protocal) doesn't negate the need for the other puzzle pieces (eliminating foods and chemicals that cause reactions).
Just for the peace of mind, I'd get properly diagnosed if I lived near someone who could do it. From what I've seen, Dr. Afrin is the closest to me but that's still 8 hours away which means I'd need to get a hotel, etc.
I'm just wondering if throat and tongue swelling always lead to anaphylaxis.
I remember my dd hated how she felt after the epi pen so I'd rather avoid that. They used to recommend you go to the er post epi pen too. Do they still recommend that?
Hmmm, I should get a script to test tryptase just in case I end up in the ER. If my allergy bucket is full right now this could happen again from a different allergen easily.
Hmmm, I should get a script to test tryptase?
use an EpiPen
Thanks for nagging me. I called today to request an epi pen be called into my pharmacy and a suggestion on doctor. No sense being worried when I could have what I need handy.
I still have a headache from all that. A freind suggested that all that Benadryl may have dehydrated me. She's probably right. A single dose dehydrates me and I had at least twice that.
I think I have mast cell disorder.
I am now taking zyrtec which helps with the muscle and bone pain after using so many medications with no results.
I also have a very large and burning belly, and a white raised coated tongue. The tongue symptom appeared very suddenly.
Would you mind sharing where, in general terms, you live? I'll try to find a masto doctor near you...
It's also usually a good idea to take an H2 blocker. My preference is famotidine, which I take 3 times a day, with meals.
Hmm, the tongue thing could be a fungal infection. Have you taken steroids lately?
I live in San Francisco bay area.
I have some ranitidine at home. Tried it before with no obvious effect, but never with Zyrtec.
I was not using steroid when I got the tongue thing