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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Treatments Trialed

Prescriptions
  • Minocyline – 1 Month -100MG
    • No real effect
  • Valtrex – 1 Month – 1000mg
    • No real effect and doctor wouldn’t extend
  • Low Dose Naltrexone – 2 Months – 4.5mg at highest
    • May have helped slightly but resulted in severe insomnia
  • Amoxicillin – 1 Week
    • No discernible effect
  • Budesonide – 9mg – 3 Weeks
    • Stomach seemed a bit better but nothing substantial
  • Corticosteroid Nasal Spray
    • Not really much help.

Supplements
  • Methylation
  • D-Ribose
    • Used to help but now no longer effective
  • Bioavailable B-Vitamins
    • Used to help with depression and anxiety but now can result in too many negative effects
    • B12 will result in occasional depression relief
    • B2 can reduce histamine burden after eating
  • Vitamin D3
    • Used to help with depression but now worsens weakness
  • Magnesium
    • Decreases anxiety
  • Pregnenonolone
    • Increase in Acne, No Noticeable increase in Energy, No Noticeable Increase in Sex Drive, Discontinued Usage
  • L-Glutamine
    • Seems to help a bit with soothing gut issues
  • Glycine
    • Sometimes calming other times nothing.
  • Candizyme
    • No Discernible Effect
  • Sachomyres Boullardi
    • No Discernible Effect
  • Serrapeptase
    • No Discernible Effect
  • Yucca Stalk
    • No Discernible Effect
  • Capryllic Acid
    • No Discernible Effect during 1st trial, Second Trial High Dose, Increase in Fog, Nose Pain, and Headache
  • Mastic Gum
    • No Discernible Effect
  • Potato Starch
    • Increase Stomach Inflammation
  • Nasal Spray With Grapefruit
    • No Discernible Effect
  • Quercetin & Bromelain
    • No Discernible Effect
  • L-Dopa
    • No Discernible Effect
  • Black Elderberry
    • Increase in Nasal Secretion, Increase in Acne, Increased Night Sweats, Potential Bad Reaction
  • Glycine
    • No Discernible Effect
  • Peppermint OIl
    • No Discernible Effect
  • Zinc Carnosine
    • Possible increase in dry eyes, causes chest tightening and stomach pain
  • Choline/Citi-Choline
    • No Discernible Effect
  • Lithium Orotate
    • Possible increase in depression, need to perform second trial
  • Feverfew
    • Increase in Headaches
  • Humaworm
    • Felt terrible, got testicular pain from it.

Comments

Hugo
Not fun to have so much setbacks with everything you try. I myself started to have problems with jarrows methyl complex after a while. I probably over did it since I notice it gave me energy. It had the same wire feel you get from coffeine so it wasnt that positive but I ended up taking more for some reason. I also tried l-carnitine maybe the combo wasnt so good.

Is L-Dopa a supplement?
 
Oberon
L-Dopa is actually Mucuna Pruriens which didn't do a whole lot for me. I did read the supplement form varies in quality by quite a bit and it's hard to find something high quality enough to give you an effect. I figured I would try it anyways.

This is the one I tried:
https://www.amazon.com/NOW-Foods-Mucuna-L-Dopa-Vcaps/dp/B001QG5F0W
 

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