XMRV treatment trials in Nevada

[redo]

Drugs being used to treat XMRV in WPI's study?

Hi,

I assume that the WPI have begun, or have plans to begin with treatment trials of the patients.
But does anyone know which drugs that they use or have plans to use?

 

[lostinthedesert]

While wpi is likely planning some clinical trials, they are in an awkward position until some confirmatory study re Xmrv and me/Cfs makes it to publication. I imagine that their current wave of testing will also be used to generate a list of Xmrv+ patients who may be offered a spot in drug trials. Still if they roll out any significant drug trial they risk a public $hit storm. I bet that initial studies will be small and well guarded.

 

[Jenny]

Someone on another message board has mentioned that they know someone who is participating in a trial of HIV antivirals in Nevada for XMRV, starting in June. Doesn't mention WPI though.

Anyone know anything about this?

Apols if this is discussed on another thread.

Jenny

 

[hensue]

:Retro smile: If treatment trials are going on I would like to know about it.

Anyone? Anyone?

 

[redo]

Someone on another message board has mentioned that they know someone who is participating in a trial of HIV antivirals in Nevada for XMRV, starting in June. Doesn't mention WPI though.

Anyone know anything about this?

Apols if this is discussed on another thread.

Jenny

Great news. Please post a link to the other board Jenny (if links are not allowed, then please PM me).

 

[Jenny]

Here's the link redo:

http://health.groups.yahoo.com/group/EuroLyme/message/91415

Jenny

 

[valia]

Here's the link redo:

http://health.groups.yahoo.com/group/EuroLyme/message/91415

Jenny

Here is a later post:

http://health.groups.yahoo.com/group/EuroLyme/message/91445

her contact reports:

the drug trial (originally scheduled for June 2010) has been postponed because the private institute is out of money.

 

[leaves]

Thatt is so interesting !!
Could you please please please copy paste I can't open it ??

 

[jimbob]

I went on patients like me because I heard some were on azt and i might be trying Ral soon. the only reply so far is about someone called witchywoman who took azt not long after science paper published and returned to normal health. she was from AZ.

 

[serenity]

"returned to normal health". wow, those words are haunting.

 

[leaves]

Yes ... They are

 

[valia]

Thatt is so interesting !!
Could you please please please copy paste I can't open it ??

Hi leaves,

that's about all it said, but please don't take it as fact, it was just what was posted on another board in response to the Dr Bell appeal

 

[ukxmrv]

You need to be able to be a member of the group to read the message. This is to protect the confidentiality of posters. To read the messages join the Yahoo group Eurolyme.

 

[citybug]

Didn't Dr. M say they wanted to do a trial of peptide T in the fall and they were waiting for approval of human study from a gov't agency? I think it was in the prohealth video. Just remembered there are transcriptions.

 

[Knackered]

I went on patients like me because I heard some were on azt and i might be trying Ral soon. the only reply so far is about someone called witchywoman who took azt not long after science paper published and returned to normal health. she was from AZ.

How long had she been on there before she posted about taking AZT?

 

[jimbob]

sorry Knackered, that's all the info I could get. the people on that site seem to me that their behind the times a little! I get this weird cult feeling when i'm on there!

 

[subtr4ct]

How long had she been on there before she posted about taking AZT?

Her page indicates that she has been a member since 11/2009, but she put in data regarding her health going back to 1988. Link.

 

[jimbob]

Zidovudine (AZT) and Chronic Fatigue Syndrome
posted by witchywoman on Nov 07, 2009
I would like to report that after my doctor saw the results of the research at Whittemore Peterson Institute, he decided to try me on AZT. I won't look back - despite slight diarrhea and nausea the first couple of days of treatment, I started to feel an improvement after the first week, now it's like the fog has lifted from my mind, and I can think clearly, and I can get by with 8-9 hours of sleep. The pain has gone down to a very manageable level, and I have more strength in my arms than I'...
nov 7th is my b.d., must be fate!

 

[starryeyes]

Thank you Bob, I didn't want to have to join to read it.

Sounds encouraging.