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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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after much deliberation I would also prefer to be negative because of the implications for treatment and possibly having to take a cocktail of drugs for life. However, my situation is different from many because I believe my current treatment can lead to a recovery with a nagging retrovirus being a possible snag in that equation. Like imready, I also believe that if I were negative, this can't be the cause because of the classic presentation of symptoms.
If I didn't believe my current treatment could resolve a retrovirus-free disease and lead to remission in the ampligen sense from a retrovirus-involved disease, I would probably want to be positive.
Emotions will run high due to polar-opposite reactions to these testing results and other XMRV-related developments. I hope we'll continue to be open-minded about this and not take others' reactions personally.
Er, yes, I do.Do you have a prostate gland? Sorry, that's trite, but thats sort of how my thinking goes.
I'm about 3 years into this illness and I've only gotten worse to the point of being bedridden with nothing I've tried helping even marginally, so honestly, I feel any answer would be positive, personally.
Would you consider yourself a pure CFS/ME patient or do you additional problems with fibromyalgia, lyme, or had a severe trauma etc... I'm just curious because I'm waiting for my results to come back from VIPDX and I strongly believe that if I test negative then XMRV cannot be the cause of CFS/ME. My reasoning behind this is that I consider myself to have the classic symptoms of CFS/ME. I don't have fibromyalgia, lyme etc...
I didn't see a negative vote in the XMRV poll, are you going to add your results to the poll?