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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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after much deliberation I would also prefer to be negative because of the implications for treatment and possibly having to take a cocktail of drugs for life. However, my situation is different from many because I believe my current treatment can lead to a recovery with a nagging retrovirus being a possible snag in that equation. Like imready, I also believe that if I were negative, this can't be the cause because of the classic presentation of symptoms.
If I didn't believe my current treatment could resolve a retrovirus-free disease and lead to remission in the ampligen sense from a retrovirus-involved disease, I would probably want to be positive.
Emotions will run high due to polar-opposite reactions to these testing results and other XMRV-related developments. I hope we'll continue to be open-minded about this and not take others' reactions personally.
Er, yes, I do.Do you have a prostate gland? Sorry, that's trite, but thats sort of how my thinking goes.
I'm about 3 years into this illness and I've only gotten worse to the point of being bedridden with nothing I've tried helping even marginally, so honestly, I feel any answer would be positive, personally.
Would you consider yourself a pure CFS/ME patient or do you additional problems with fibromyalgia, lyme, or had a severe trauma etc... I'm just curious because I'm waiting for my results to come back from VIPDX and I strongly believe that if I test negative then XMRV cannot be the cause of CFS/ME. My reasoning behind this is that I consider myself to have the classic symptoms of CFS/ME. I don't have fibromyalgia, lyme etc...
I didn't see a negative vote in the XMRV poll, are you going to add your results to the poll?
Did you do the PCR and the antibody test or just the one or other??
I did both
What is the new day group?