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Hi Folks:
I am wondering the following: if XMRV is in white blood cells that are found in bone marrow could that impact bone density? I have lost 50% of my spine bone density which is quite severe. I know some folks with CFS don't show any particular bone density or osteoporotic loss and yet there are some of us with extreme bone density loss. In my case of up to 10%/year.
Curious why that might be different in some of us and if XMRV might be implicated. I'll be getting XMRV testing in a few months and will post if I am positive or not. But I'd love to know if other XMRV positive folks have severe bone density loss.
And if it is due to the XMRV, if that could suggest any new treatment directions.
Of course having exercise and orthostatic intolerance and a paralyzed gut, hallmarks of CFIDS, also impact bone density.
I have bone & marrow biopsy tissue available in the deep freeze but can't, so far, find an XMRV researcher interested in looking at them. ~FernRhizome
I am wondering the following: if XMRV is in white blood cells that are found in bone marrow could that impact bone density? I have lost 50% of my spine bone density which is quite severe. I know some folks with CFS don't show any particular bone density or osteoporotic loss and yet there are some of us with extreme bone density loss. In my case of up to 10%/year.
Curious why that might be different in some of us and if XMRV might be implicated. I'll be getting XMRV testing in a few months and will post if I am positive or not. But I'd love to know if other XMRV positive folks have severe bone density loss.
And if it is due to the XMRV, if that could suggest any new treatment directions.
Of course having exercise and orthostatic intolerance and a paralyzed gut, hallmarks of CFIDS, also impact bone density.
I have bone & marrow biopsy tissue available in the deep freeze but can't, so far, find an XMRV researcher interested in looking at them. ~FernRhizome