Gerwyn... Thanks for this! It HAS been on my mind (although I try not to get "fixated" on the possibilities, since I'm getting older and anything can happen!)...but, there are quite a few "cancers" in my family (BC, Lung, Stomach, Melanoma, and Head/Neck Cancers - in fact my Father DIED of Cancer of the Parotid Gland! (one of the not-so-common types)...in addition to Alzheimers.
I'm lucky that my docs (I.D. especially) do a CBC quite often (so wbc/rbc, liver enzymes, even cd4&cd8, etc.) are monitored. In fact, with my previous LOW cd4 count and then a surge (nearly 1500!)...I "secretly" suspect that IRIS may be taking place in those of us using high AV's! (my un-scientific theory). Then again - rising Tcell counts (if TOO high) are not a good sign either! And then there is C-reactive Protein (mine have been rising steadily, every 3-4 months for the past year and are now at over 7...from a start of 1.4) What does that say about what might be happening to "us"?
But how (in your opinion) is one to monitor THEMSELVES for the possible development of Lymphomas/Leukemia? We certainly can't rely on how we FEEL (if you are moderate to severe me/cfs)...and unless you rapidly begin to drop weight, for example...how do we stay on top of this and what can we watch for?
Soon after XMRV news broke, one of my docs said he had read about the higher incidence of Thyroid Cancers (in me/cfs)...so he ordered a thyroid ultrasound - which showed multiple hypo-echoic cysts/lesions! But because they are just under 1cm (the size needed to have a needle biopsy) no action was taken.
Now I'm developing large (some VERY large - the size of my fist!) what my docs refer to as "Lipomas" in several areas of my body...and yet, are they? They aren't normal - they shouldn't be there...but nobody wants to deal with them! (They say the only solution is to have them surgically excised...but there wouldn't be much of me LEFT! AND some are right along my spine...and they say excision could be risky.) I keep pointing the new ones out to my docs...and they keep burying their heads in their laptops!
Like everything else with managed health care, (contrary to what they advertise!)...the Ins. co's would prefer to "treat" you (while still fighting any treatment!)...AFTER you are dx'd with something...rather than focus on preventative care!imo
I can't imagine anyone taking my concerns of these real possibilites to heart...to be taken seriously with ANY worry or complaint is our continuing problem...sigh!) jackie:worried:
(saw Lisa's post...I have CHRONIC VZV and a new development of HSV1, chronic enteroviruses) AND CMV! and my doc called the other day and said if he tested my dna right now...he was sure he'd find VZV! so...yikes!