WPI UK XMRV testing/study

[Dolphin]

I think things are still fluid from what I can gather. The organisers on http://www.xmrvweb.me.uk/ are still arranging more venues. Contact them to see if they have Ireland dates sorted.

They don't know (one hopes to mind out tomorrow for me).
Thanks for the reply.

 

[Righthammer]

Check Uk study forum for new info...

 

[paddygirl]

Irish testing

I had emailed Judy M ages ago when I heard of the UK testing. I offered to get to the UK to be tested, she replied, amazingly. I wish the Health Minister here was as accessible.

She said they hoped to test at some point soon in Ireland and that she would forward my email to the study co-ordinater.

Any advice on what to do? I don't want to keep bugging her and the WPI.

Thanks for any advice.

Paddy

Ps Isn't this amazing, world class scientists giving a shit about us and our own medical people laughing at us, literally.

 

[Righthammer]

I had emailed Judy M ages ago when I heard of the UK testing. I offered to get to the UK to be tested, she replied, amazingly. I wish the Health Minister here was as accessible.

She said they hoped to test at some point soon in Ireland and that she would forward my email to the study co-ordinater.

Any advice on what to do? I don't want to keep bugging her and the WPI.

Thanks for any advice.

Paddy

Ps Isn't this amazing, world class scientists giving a shit about us and our own medical people laughing at us, literally.

Hi Paddygirl,

I have sent you a pm on this matter.

 

[Countrygirl]

Will anyone on the UK study who has not had their blood drawn in England, please see the urgent new posts on the xmrvweb forum tonight. (Tuesday)

Thanks.

Countrygirl

 

[Diva55]

Hi
I cannot access the forum - even though I've registered. I've not had my blood drawn though I'm supposed to be included in the study.
So you could update this list or even PM me.

I'd really appreciate it

Thanks

Will anyone on the UK study who has not had their blood drawn in England, please see the urgent new posts on the xmrvweb forum tonight. (Tuesday)

Thanks.

Countrygirl

 

[Countrygirl]

Hi

I cannot access the forum - even though I've registered. I've not had my blood drawn though I'm supposed to be included in the study.
So you could update this list or even PM me.

I'd really appreciate it

I'm send a PM now and I hope we can ensure that you gain access to the forum as there is some interesting information there for you to read. Do remember, of course, that it cannot be discussed outside of our secure forum for fear of compromising the study.

C.G.

 

[Jenny]

Hi Diva

I booked in for the London/SE draw last week, was told I'd get an email about the venue, but heard nothing. I wasn't included in the draw a couple of months ago either even though I've been accepted onto the study. I've just about given up with this - I've emailed Ed Cutler several times and get no response.

Jenny

 

[ukxmrv]

Jenny (and anyone else who has not heard back)

Have you tried the group set up to the support the study?

http://www.xmrvweb.me.uk/index.html

 

[Countrygirl]

Hi Diva

I booked in for the London/SE draw last week, was told I'd get an email about the venue, but heard nothing. I wasn't included in the draw a couple of months ago either even though I've been accepted onto the study. I've just about given up with this - I've emailed Ed Cutler several times and get no response.

Jenny

Hi Jenny,

If you have not yet had your blood drawn, please go to our forum for information.

xmrvweb.me.uk

Warmest regards,

Jenny

 

[Jenny]

Thanks Jenny - I was on your site, but couldn't get on to the forum until last week for some reason. Am on now.

Jenny

 

[Countrygirl]

Urgent message Sunday 15th August.


Please will everyone on the UK study please visit the forum xmrvweb.me.uk for a message asap.

Unfortunately, if you haven't already joined the forum, we can't enable you to have access for a couple of weeks as our administrator is away.

Thanks,

Warmest regards,

Jenny

 

[Tia]

I had emailed Judy M ages ago when I heard of the UK testing. I offered to get to the UK to be tested, she replied, amazingly. I wish the Health Minister here was as accessible.

She said they hoped to test at some point soon in Ireland and that she would forward my email to the study co-ordinater.

Any advice on what to do? I don't want to keep bugging her and the WPI.

Thanks for any advice.

Paddy

Ps Isn't this amazing, world class scientists giving a shit about us and our own medical people laughing at us, literally.

Yeah, I've talked to her to. Really a FABOLOUS person that Judy.. Just the kind of person you immediately like. Scientists have all my respect now, doctors? Not so much.. if any at all. I think they're so kind and empathic towards us because the one scientist there have a daughter with ME who works part time but wants to be able to work fulltime and do all the things she'd like, so there's a mother in pain there who grasps what we all go through and really want to help us.

 

[bananaman]

As Dr Mikovits is presenting an abstract of the UK study on Wednesday at the workshop, would any body care to speculate on the total % of XMRV MLVs positives from the UK study?

Perhaps Dr Mikovits could post Professor Wessely a nice postcard from Maryland, USA to Kings College, London kindly filling him in!

 

[VillageLife]

Maybe this needs it's own new post!?

 

[Esther12]

I'm sure there'll be a new thread when we get news of the results.

 

[thegodofpleasure]

Prevalence of XMRV / MLV in the UK

As Dr Mikovits is presenting an abstract of the UK study on Wednesday at the workshop, would any body care to speculate on the total % of XMRV MLVs positives from the UK study?

I'm going for 83%.

TGOP :Retro smile:

 

[Alexia]

I will say 70% XMRV positive...

 

[jace]

I guess 96% (ever the optimist)

 

[hope]

jace, if its 96% ill eat my hat with strawberry sauce on top! :Retro smile: