We would also like to report that WPI researchers have previously detected XMRV in patient samples from both Dr. Kerrs and Dr. van Kuppevelds cohorts prior to the completion of their own studies, as they requested.
We have email communication that confirms both doctors were aware of these findings before publishing their negative papers.
In addition, Dr. van Kuppeveld asked for and received reagents and a positive patient sample to determine if his testing procedures could in fact detect XMRV in a positive blood sample before he published his paper. We wonder why these materials were not used in his study which also failed to detect XMRV.
One might begin to suspect that the discrepancy between our findings of XMRV in our patient population and patients outside of the United States, from several separate laboratories, are in part due to technical aspects of the testing procedures.
To help identify the possible reasons for the discrepancies in detection of XMRV, WPI would like to send you known positive patient samples with controls, from the United States in an appropriate number, along with WPI reagents, so that we can help you determine whether your testing methodologies will accurately detect XMRV in a clinical sample of blood.
In addition, WPI would be willing to test a like number of samples from your patient cohort to see if our researchers can detect XMRV in those samples.
This critical exercise would help resolve the question of whether you are using all of the appropriate techniques necessary to detect XMRV in a patients sample. If your tests are able to detect XMRV correctly in the known positives, then the debate can appropriately center on whether we can identify the differences in the patient cohorts which have been the subject of various studies. It is in this systematic manner that we all may help to move the science forward; instead of continuing to debate whether or not ME/CFS patients in Europe are infected with XMRV.
the patient samples did not come
from the “Lake Tahoe outbreak” as you assert, but rather from patients who had become
ill while living in various parts of the United States.
...Maybe the UK have been told they weren't aloud to say XMRV was here...but thats unlikely, how would they ever get away with it. You cant get away with stuff like that in 2010, can you?
I think the UK Government/doctors have a lot to be worried about, people have been treated like dirt that have CFS/ME....they know we are going to want pay back. You couldn't think of a bigger scandal, doctors/nhs treat people with CFS/ME like there insane....then it might turn out they actually had one of the most serious illnesses - a retrovirus.
I was treated so badly by doctors in hospital, they made me go for runs - being pulled along, held my hand tight and made me go for long, long walks - Up hills, through the countryside and sometimes with no shoes..... wouldnt let me lay down and made me go to school, (result I nearly died) then in the end they said, oh well...you do actually have CFS.
we would also like to report that wpi researchers have previously detected xmrv in
patient samples from both dr. Kerr’s and dr. Van kuppeveld’s cohorts prior to the
completion of their own studies, as they requested. We have email communication that
confirms both doctors were aware of these findings