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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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What exactly is going on then, particularly in our brain? Is it just oxidative stress?
Thats amazing that something random like cumin worked so well. I'll check out that thread, thanks.At first it simply blocked physically-induced PEM (I still had cerebrally-induced PEM). After a year or two, I tried going without cumin, to see if it was still being effective. Well, I've done lots of physical exertion since then, and never had PEM from it, so I think that counts as cured. I still have other ME symptoms such as mental lethargy, so my ME definitely isn't cured, but getting rid of PEM from physical activity sure is nice.
See this thread for details: https://forums.phoenixrising.me/threads/cumin-cuminum-cynimum-possible-pem-blocker.56232/
If you try it and it works for you, please let me know. It's hard to believe that I'm the only PWME that it would work on.
That's so amazing you can give yourself an IV. I've been doing IV therapy for months. And recently when I added IV glutathione, I can see my brain is better than ever. Even before this disease 10 years ago.What exactly is going on then, particularly in our brain? Is it just oxidative stress? I have glutathione IV's I can give myself. I'm wondering if that may help
It definitely helps me. I've gotten between 1 and 4g IV and take 1.4g Setria glutathione orally daily. It reverses PEM within 30-40 minutes and if helps me avoid PEM in the first place.What exactly is going on then, particularly in our brain? Is it just oxidative stress? I have glutathione IV's I can give myself. I'm wondering if that may help
That's great, @Learner1It definitely helps me. I've gotten between 1 and 4g IV and take 1.4g Setria glutathione orally daily. It reverses PEM within 30-40 minutes and if helps me avoid PEM in the first place.