Working with Moderate CFS?

[Booble]

When you feel up to it, you might want to do some searching and make a list of wellness sites and blogs that you like. A lot of these places are always looking for content. You might be able to do some freelance work on your time and bring a little money in the door. If you want help with what to say when you contact them let me know and I'll be glad to help you.

 

[Alvin2]

There is this cultural belief that as a man you should be independent and provide for yourself that I struggle with.I understand this evolutionarily as it keeps society going.

I'm going to disagree, its a philosophy. But ME is not an ideology or a philosophy, its a serious disease that affects physical and cognitive functioning. So you have to adapt.

My family expects great things from me being a college grad and to someday support myself.

I'm sorry to hear this but at this point you have to take care of yourself, with whatever it takes.

Yes it makes sense what others are saying about this
condition not being linear.Once can pace and still
relapse.Sort of what i am feeling now.Hopefully
It is just PEM.This condition is unpredictable.

You can't assume you will even stay at the same functioning as you are at now. This sucks emotionally but logistically you have to use it to figure out how to manage going forward. I don't know what percent of ME patients can't work but i'm sure its not a low percent.
You need to do whats necessary to survive now. If you stay at this level or improve those are bonuses and i hope you do improve.
Hope for the best, plan for the worst.

I know i sound preachy but i have been where you are now, and i would do things very differently if i had the opportunity.

 

[Booble]

Having the opportunity to do some productive work when you are able is a positive step and beneficial in so many different ways.

 

[Alvin2]

Having the opportunity to do some productive work when you are able is a positive step and beneficial in so many different ways.

And when it makes you worse permanently you end up asking yourself why did i screw myself over?
It wasn't worth it becasue progression telescopes into the future.
With this evil disease pushing yourself is a bad idea. We all have bills to pay but if making yourself worse makes it impossible to pay them later your screwed.

 

[Hufsamor]

My suggestion would be to offer teaching by internet?
For the moment, many schools around are closed, so I suppose this is a good time to get started. And you wouldn't have to concentrate for more than half an hour or so at the time.
If I where you, I would make an advertisement right away, while the situation is like it is.
If you are very unsure about how to do this, you might offer free help in the beginning, either for a month or so, or the first two or three lessons,
This way you will also see if you are able to do this kind of work or if it gets too stressful. And you might get yourself some accommodations (? I think? Ask your students to write how clever and nice you are?) -EDIT RECOMMENDATIONS was the word I was looking for

(I might add...I can often keep going for up to three months before I collapse.
So start slowly. Twice or three times a week is more than enough. Working might give you a boost, and you might get so exited that you feel you could work a lot, but that is most likely your adrenaline talking. Don't listen! Adrenaline is a big lier! Stick to your plan, you can expand in half a year or so, if you still feel alright)

If online lessons and help for homework works ok for you, I guess it's a fine possibility to earn a little bit?

I was in part time work for several years with me/ cfs.
As long as you're able to work a little bit, it's a VERY good thing to do.
I supporte you a hundred percent on this.
If, in the end, you're not able to work after all, you have at least tried.

 

[Booble]

And when it makes you worse permanently you end up asking yourself why did i screw myself over?
It wasn't worth it becasue progression telescopes into the future.
With this evil disease pushing yourself is a bad idea. We all have bills to pay but if making yourself worse makes it impossible to pay them later your screwed.

Agree about pushing yourself. It's really about finding the level that you can do that actually makes you feel good rather than push yourself beyond what your body can handle. For me the distraction of work that doesn't require my physical body makes me forget that my body feels like crap.

 

[Alvin2]

Agree about pushing yourself. It's really about finding the level that you can do that actually makes you feel good rather than push yourself beyond what your body can handle. For me the distraction of work that doesn't require my physical body makes me forget that my body feels like crap.

Fair enough. I have found i have to assume i can't do anything and what i can do is a bonus. Because if i go with the assumption that i can do something that always fails and has to be ratcheted down.

 

[Booble]

Yes, it's a pretty unforgiving condition for sure.
I guess we all have to really learn about and listen to our own bodies (and minds) to figure out paths forward at any given period of time.

 

[Davsey27]

I have tried working with the computer here in Mexico
Seems like within 30 mins of using the laptop with the wifi on at night and fluorescent lighting I feeling like I am unable to think and in a daze so turn off the wifi
on the laptop.Turn the lights off and find some relief

Feels like unless lights are off shortly after the sunsets
I don't feel good

Being outside in the sun is usually quite the opposite.Seems to have a good effect on the body.

When I do research stuff and write on my cell phone out in the sun during the day it's not quite as bad during the daytime as it is being indoors at night

Any ideas on how to make a living within the next 30 days ?



What I was thinking was to find a way to make 500 then cross into Belize with a bus and come back here.

Appreciate any input

 

[Booble]

I think for a quick 500 you'd have to know someone who knows you and needs some help with something you could do for them.

If you'd like to get some free gift cards to Amazon, my company JamBios gives $1.00 in virtual currency for each referral of a friend that registers. If you build up to $25.00 you can convert to real Amazon gift certificates. It's completely free for you and your friends to register with no catch. JamBios is a free place to write your memories and life stories. (It's actually pretty therapeutic when you're not feeling good too.)

If you are wondering why we give away free money, the reason is that we are working on building up our User base and $1.00 per referral actually costs us less than Facebook and Google ads.

Here is a link if you'd like to register. Your referral link would be under Rewards on the top black navigation menu. If you use Facebook or other social media you can have your friends sign up with your referral code.

https://jambios.com/story-of-you/

 

[Davsey27]

Appreciate it your help boobie.

I am a bit confused

I am curious how is it possible to make 500 doing this ?

Is this multi level marketing?

 

[Booble]

No, I say at the beginning that to make $500 you're likely going to need somebody you know who knows you and has some extra work you can do. I don't know if any other way that you can quickly get a job or work that would pay you $500.

JamBios that I mentioned is a website for writing and sharing and saving memories, life stories and family stories. It's a free website and all the stories are kept private unless you to choose to share any of them.
I was just telling you about the Rewards referral program where you can earn Amazon gift cards.

 

[Davsey27]

No, I say at the beginning that to make $500 you're likely going to need somebody you know who knows you and has some extra work you can do. I don't know if any other way that you can quickly get a job or work that would pay you $500.

JamBios that I mentioned is a website for writing and sharing and saving memories, life stories and family stories. It's a free website and all the stories are kept private unless you to choose to share any of them.
I was just telling you about the Rewards referral program where you can earn Amazon gift cards.

How about making a quick 500 doing surveys.Do you this is possible?

Thank you

 

[Booble]

I have some friends who have done surveys for money but it's small kine money and takes time. Good luck!

 

[deb74]

I work for myself. There is no way I could do normal job! I never know from one day to the next how I will feel.

 

[Booble]

Deb, what kind of work do you do?

 

[deb74]

Hi Booble. I am a craft worker. I make jewellery which I sell in a local craft shop.

 

[lenora]

@Alvin i hear what you are saying

There is this cultural belief that as a man you should be independent and provide for yourself that I struggle with.I understand this evolutionarily as it keeps society going.

My family expects great things from me being a college grad and to someday support myself.

Yes it makes sense what others are saying about this
condition not being linear.Once can pace and still
relapse.Sort of what i am feeling now.Hopefully
It is just PEM.This condition is unpredictable.

Thanks

Hi Davsey27......It's too bad that you feel you have to meet your family's expectations. It's a fools game...and I should know, I played it for a long, long time and it probably helped lead me to where I am today. On the other hand, if you're happy with it and are coping, then continue. We're not all the same and we have to realize that. There are so many variations of "normal."

No, this condition is most definitely not linear. It varies considerably from day to day, even from weather report to weather report. It's a nasty little business and it causes immense pain (to me at least).

It's tough that indeed, most males do feel they should provide for themselves; today that probably also includes women. What happens is this: We keep going for as long as we can and then our health totally disappears. But isn't that the case for everyone?

I think of others who are even worse and I realize just how fortunate I am. Thinking does help with this illness. Staying positive is a tremendous help but, unfortunately, no cure. I wish you better days ahead and I know that your life feels that it has stopped. You'll find out as you go along, that there are many lives that are lived. Good luck to you. Yours, Lenora.

 

[Davsey27]

Thank You Lenora,

I hear you on not relying on the researchers to find a cure

I am out here in the tropics.Experimenting with if the tropics will help with ME/CFS.Thus far without any medicine/supplements I havent seen much improvement.

I decided to get some Isoprinosine last night at a pharmacy here in Mexico after hearing that Klimas has seen success with it.I paid about 21 dollars for 20 pills
over the counter.I may have to pulse 2 pills one day and 1 pill the next with the cost

I understand sometimes one should be there own doctor in this area until a specialist who knows what they are doing is found.Until then I am experimenting with some of their ideas

Today I took 2.Could be a placebo but noticing better heat tolerance.Also,putting Himalayan salts in the water for potential heat induced OI.

 

[lenora]

Thank You Lenora,

I hear you on not relying on the researchers to find a cure

I am out here in the tropics.Experimenting with if the tropics will help with ME/CFS.Thus far without any medicine/supplements I havent seen much improvement.

I decided to get some Isoprinosine last night at a pharmacy here in Mexico after hearing that Klimas has seen success with it.I paid about 21 dollars for 20 pills
over the counter.I may have to pulse 2 pills one day and 1 pill the next with the cost

I understand sometimes one should be there own doctor in this area until a specialist who knows what they are doing is found.Until then I am experimenting with some of their ideas

Today I took 2.Could be a placebo but noticing better heat tolerance.Also,putting Himalayan salts in the water for potential heat induced OI.

Hi Davesey27......Be very careful, you don't want to cause even more harm to your body. I don't know where you lived before, but the tropics can be brutal. May I ask if you tried desert living in AZ? Be careful...and not just for snakes.