Okay, revisiting this thread. The burning spine...what to do about the burning spine. Mine seems to always start at the C7-T1 juncture. I feel it in the discs. The pain can extend lower, but typically progresses toward the base of my skull. It is also often accompanied by a burning pain in my trapezeus muscles, but especially my shoulder joints. The joint pain can migrate throughout my body throughout the day...but the spine pain is nearly constant.
I've done three rounds of PT with manual traction and at-home traction. Sometimes it helps, sometimes it makes it worse as it can trigger muscle spasms. I am CCI+, but not a surgical candidate. Still, it's hard to tell if this is CCI as it feels inflammatory in nature. I use Pain Terminator patches or CBD/THC roll-on salve. They reduce the pain/burning, but it remains.
Is this straight up ME, or is there something else going on. I've had many MRI's done and only mild findings at C5 and the CCI finding, which was also considered mild. During crashes I have numbness or tremor, especially in my ulnar nerve distribution in both arms. This has occurred since my ME relapse in 2016. Sometimes I have a burning sensation on my skin along the ulnar nerve distribution, this predates my ME.
Are there medications to treat this? If I could dampen this symptom, it would greatly improve my function.