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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Tomorrow. They've been waiting for Reuters to provide the spin.
I emailed 30 UK newspapers this evening explaining the story and sent various website links.
The thing Is they probably want to down play this whole thing....how can they 85% is a FACT.
so ............ if some bright spark had found a retro-virus in 86% of cancer patients and had that study replicated, ..................... would there be this same deafening silence?
We are f%@ked - this is a stitch up - hope no-one is defending the daily mail etc now.
I have had enough of this shite.
This stinks.
Tania, some of the UK journalists are annoyed at the amount of calls they are getting on this already.
Not everyone wants to work on this the same way or risk their contacts being deluged.
It's up to people in the UK to decide how to tackle this and people will have different ideas/plans. We don't speak with one voice or have one plan. We do however, have people who are doing this as best they can and in the manner that think is best.
My very best wishes and thanks to everyone who is working on publicity.